Very sad indeed

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DFC
Regular Member


Date Joined Apr 2006
Total Posts : 136
   Posted 8/17/2010 11:14 PM (GMT -7)   
 
I am very sad to see the demise of this site...however it doesn't surprise me in the least. We need relavent information for those terrified with what is happening in their life. Sometimes that that means state of the art information about MS. Sometimes it means patience while waiting for a diagnosis...easier said than done. Sometimes it means having someone to listen when those close to us cannot see our fears and they themselves are afraid). Sometimes,  both our family and we ourselves are in denial. This disease can take years to diagnose, so in the meantime, we need educational, psycological and emotional support. Lets, all of us, try to lend support. Lets direct people to other sites so that they can get information and many different points of view in conjuntion with Healing Well site and forum. ln the end we all win with support, information  and new approaches to an old disease and disability. Lets not just depend on a higher power to make it all go away. Rather, let embrace the belief that God helps those who help themslves. Be a well informed advocate of your own medical care...not  ever an easy thing to do but a very necessary approach toour own care.
 
It took me 13 years, trying to convince the medical community that I wasn't neurotic. Keep plowing ahead and be as precise as you can with your symptoms right down to the time and date of the symptoms. Write them down and make sure that your primary care M.D. is listening.  Aso, not all neurologist specialize in M.S. Try not to be emotional, but rather very matter of facts .Stand your ground, but in a positive way (ie: I need your help) rather than in an antagonistic way that may alienate your doctor.
 
Good luck everyone.
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