elder woman survives lifetime of MS symptoms

Do you feel society mistreats you or doesn't believe your MS symptoms.
2
yes - 33.3%
2
no - 33.3%
2
maybe - 33.3%
0
don't know - 0.0%
0
none of your business - 0.0%
0
other - 0.0%

 
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ZencaliNidhi
New Member


Date Joined Aug 2010
Total Posts : 6
   Posted 8/31/2010 3:34 AM (GMT -7)   
hello from beautiful Oregon coast. Very healthy place to recover from any illness. I have had MS symptoms from teenage years and perhaps before that. One of the most pointed symptoms I had when very young was great sensitivity to over head tube lights. I would feel a nervois system fry symptom in my eyes when in those lights. I had other attacks of weird undiagnosed symptoms when quite young including horrible headaches and leg aches. My nickname was "spaz". Now I am 64 and went through horrendous MS attack starting in 2000-2001 and leveling off about 2 years ago to a milder constant attack with chronic optical neuritis which gets worse and then better/worse all the time. When i was young I decided I must have had mild polio. Sometimes I thought I had leukemia............i never thought for one second until 2001 that i Might have MS. had no idea what MS was. Was very surprised when I went "blind" in 2001 (sorry; went blind is not an accurate description but it is how i "felt"). to discover my symptoms matched optical neuritis and MS. I was tormented by landlord, neighbors, family and doctors as faking it and wanting attention. Finally I withdrew to isolation style life and looked into healing this mess. I have lots of advice to give others if they want to know. Most of what I see on the internet is correct about MS so you can take all of their advice. Nobody will ever be able to describe all their symptoms. Others will always think of that as "mental illness". I heard bones crunching in my head; clicks i sinuses; cracks in neck bones; other weird things like air rushing or sand going thru an hour glass as my optical neuritis then took my memory and i became a fearful zombie. I hid in the closet and decided to leave that place with its bad doctors and had to tie ropes to my arms and legs and pull........to walk; couldn't get feet off ground when walking: shuffling. Ignored by mental health drop in centers and tortured by smelling like urine as that symptom progressed...went thru all symptoms and others new and unknown BUT I SURVIVED AND IMPROVED AND AM MUCH BETTER AND i think i know why and how to cure yourself of this horrible syndrome called MS.  P. S. food for thought: you can have MS and lyme disease too at same time. anybody ever realize that??????

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 8/31/2010 8:14 AM (GMT -7)   
Well call me a bit skeptical as you have never received an actual diagnosis of MS, but by all means do tell us how to cure this
"syndrome". 

sandfly
Regular Member


Date Joined Sep 2009
Total Posts : 27
   Posted 9/1/2010 5:38 PM (GMT -7)   
ZenkaliNhidi---please if you have any information that could be useful for the rest of us please come back and share it with us.

ZencaliNidhi
New Member


Date Joined Aug 2010
Total Posts : 6
   Posted 9/6/2010 6:43 PM (GMT -7)   
Thanks for answering my thread. I will give a lot more details when I have time and feel better. Been having head and eye aches due to hotter weather.

Elena S
New Member


Date Joined Feb 2006
Total Posts : 7
   Posted 10/23/2010 3:52 PM (GMT -7)   
Hi:  I agree with you, about the doctors.  I have so many of the MS symptoms but only abnormalities in  white matter of my brain.  I believe I need to have also some abnormalities in either my cervical MRI or the Thoracic MRI either should show lesions of MS.  I have lived for over 35 years with these symptoms.  But, the symptom that drives me nuts is the constant numbness of my head, with pressure and burning pain.  Also, my legs burn all the time.  My first symptom was optic neuritis in the late 1970s.  I have been all over without any luck.  My symptoms have become constant now.   what can you advise me?  Have you been diagnosed.  I got a diagnosis of Probable MS.  

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 11/2/2010 10:41 AM (GMT -7)   

Hi there, and good morning, have not posted here for ever, so here I am....thought I would start with this one. Ummmm, Ummmmm, Im with Gretchen - Im not jumping up and down waiting for advise on a cure for MS.  But hey, Ill listen to what this person has to say.....but has been since September since this person posted, so Im thinking we will not hear back - huh?

Anyhow have a great day, and oh hi gretchen - have u missed me????

Ha,

Gary


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3550
   Posted 11/2/2010 7:32 PM (GMT -7)   
GARY!!!!!!
 
Yes, I have missed you!  How the heck are you? 

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 388
   Posted 11/3/2010 7:13 AM (GMT -7)   

I am fine!!! doing good - enjoying life, all that jazz...and u - how r u?

Yes it has been awhile, I was visiting a website on a regulqr basis - the MS watch community - a website sponsored by Teva Industries/Copaxone - but they decided to shut down the Q and A forum - so Im looking for a new home again - thought Id come her for a visit and maybe a stay?

Anyhow nice chatting with u, and have a great day...

Gary

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