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Regular Member

Date Joined Nov 2007
Total Posts : 105
   Posted 9/4/2010 5:44 AM (GMT -7)   

I need some help with my symptoms
I have no diagnoses yet. Been suffering for 12 years and all my test have been normal. MRI, spinal tap, emg/ncv, EEG, muscle biopsy and bunch of bloo work.
Only negativeness severe vitamin d difeciancy and elevated seed rate.

For years I have tried to explain to docs and have a hard time and I thinking know this is spasticity.
I do have spasms and cramps and migrating stabbing pain all over body and twitching and burni g and tingling
But I think it all stems from the muscle tightness

For years I have had this and since four years ago it went bad in neck where my neck goes stiff for days and throat. And I can't move.

In my legs and arms all the muscles feel like they are being pulled and stryched and it hurts. And in it I get crmps and twitching and the tightness stays for days. I can make it happen if I so stretching. It's the same type of sensation web u stretch and feel the pull and burn but it's happening on it's own.
I I bend my neck up and down that same hong happens down the neck and in arms
Suddenly my neck goes out like my muscle are pulled and nailed down so I cant move. Once it happend while I had a spoon in my hand and I felt my hand go into cramp and it went all up arm and neck went stiff again and my hand became like a contracture.
So I tell doctors it's a constant state of pull and tightness for hours and days and in it I get other stuff.
But this is also in my face and thraot. I have constant state o severe tightness in my throat like muscle being pulled from both ends. And it makes the throat muscle stiff for dys.
So swallowing Is difficult cause just like trying to turn neck when its stiff trying to swallow is hard. It's like I have limited range of motion
And I have severe click sound in thraot when this happens as f bones are rubbing on each other.

Just like it can harppen in other joints it effects my throat. My arms feel like each strand of muscle is being pulled and that feeling has different levels o pain.

Thats what I always said to docs that cramps.come and go but this stay for days.
I always had stiffness in low back , I mean fluctause all day everyday. And i am having this with every motion.
Everymovent sets it off like Dominioes
So from head to toe my muscles are severely tight. And now all joints and clicking and popping cause I feel te thight around joint.
If I look down it sends a pull down whole spine. Same with low back and legs.

It feels like I am trying to move my body against the pull all the time
Is this spasticity?

Regular Member

Date Joined Nov 2007
Total Posts : 105
   Posted 9/4/2010 6:12 AM (GMT -7)   
Can spasticity be in whole body. Evevn face an throat. I can feel muscle pulling of cheek bones.
How is it diagnosed. I thinking never have explained it rightto doctors even though I have always said it's tight .
And I get this horrible shooting pain down fingers and toes that's like sustained pull.
I turn mg neck left I feel it worse I turn right I feels it worse
I haven't had stroke or accident so what could it be

Regular Member

Date Joined Nov 2007
Total Posts : 105
   Posted 9/4/2010 6:52 AM (GMT -7)   
One more thing. Recently I had an episode where suddenly I had a pull feeling in base of my skull that was maki g me shut my jawby it self. Everyone I tried to move my neck it will pull it down to it's position and teeth clenched and I couldn't talk. Last for 30 mon. Seemed like dystonia

CapeTown Jack
New Member

Date Joined Sep 2010
Total Posts : 2
   Posted 9/19/2010 8:04 AM (GMT -7)   
Please read and follow the Forum Rules. 
20. Do not use the forum to give professional medical advice. If you are a medical professional, please remember the forums and chat are for patient support and not to be used for distributing professional medical advice and/or using the forum to represent your professional services.

Post Edited By Moderator (LanieG) : 9/19/2010 8:48:53 PM (GMT-6)

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