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New Member

Date Joined Oct 2010
Total Posts : 4
   Posted 10/11/2010 2:11 PM (GMT -6)   
I would like to hear some opinions on what some of you think. Four years ago, my eyes felt weird and I had headaches and I would twitch a bit, but nothing noticeable to anybody else. This went on for 2 or 3 months. I also felt a bit jittery/jerky, but nothing noticeable to anybody else. My eyes felt like they were going back and forth very quickly, so I went to the optometrist, and he said that he did notice them moving back and forth, but only under a microscope. He said everything looked normal though. So then I went to a neurologist, and he said he thought that I was just having migraines, but not having the really bad migraines, just the side effects of them. But he ordered an MRI just to make sure it wasn't something else he said. I had the MRI done with the contrast injection, and everything looked good. On the paper that came with the MRI, it gave a paragraph of the results and the last sentence said "no evidence to suggest demyelination". These symptoms went away soon after. But, four years later (present day), the eyes feeling weird and the jittery/jerky/twitching feeling is back, but with no headache, although, I occasionally get them once in a while, just not like last time. I would like to know what you guys think about it. Your thoughts would be greatly appreciated! Thanks!

ps- I would sometimes get a feeling like going down the drop on a roller coaster. I don't know what that is. confused

Post Edited (WantingToKnow) : 10/11/2010 1:14:12 PM (GMT-6)

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 10/11/2010 8:25 PM (GMT -6)   
You need to make an appointment with an opthalmalogist or a neuro-opthalmalogist.  An optometrist is really just for corrective lenses.  You need an MD.  Also, I would make another appointment with the neuro who saw you before.  Tell him or her that everything cleared up after 2-3 months last time but it is all back again.  This is the pattern for MS so you should have another MRI.  It can take a few years for lesions to show up if this is MS. 
If you think your neurologist is going to just blame this on migraines which you don't seem to have, then try to find a neurologist who specializes in MS. 
I have heard that right around 50% of people who are diagnosed wtih MS describe vision difficulties as their first symptom. 
Best of luck. I do hope this turns out to be something treatable and not MS. 

New Member

Date Joined Oct 2010
Total Posts : 4
   Posted 10/12/2010 12:01 PM (GMT -6)   
Thanks for the reply. I really appreciate it. If this isn't MS, then do you have any idea what would cause jittery/twitching/jerky movements and a weird feeling in the eyes? And if this is MS, how long can people go without having a relapse? Is four years normal? Thanks.

Regular Member

Date Joined Mar 2010
Total Posts : 230
   Posted 10/14/2010 4:36 PM (GMT -6)   
It is interesting to me how you describe the dropping sensation as if on a roller coaster. I get that same dropping sensation or tickle feeling and describe it to others including my neurologist the same way you did. I started out with Lyme Disease in 2009 and suspect MS after i had a lumbar puncture this past January. My neuro has diagnosed me with pre-ms and has prescribed ivig treatment which i started this week.
My most recent brain MRI is still clear so i continue treating lyme with high dose antibiotics. I hoping that one or both of these treatments will bring me some relief.

I would encourage you to follow Gretchen's advice above to determine if you might have MS. I wish you the best and hope that you find out what is going on very soon.

Peace & Healing,

Peace and Healing
Lyme Disease - Doxycyline, IV-Rocephin, Amoxicillin, Azithromycin, Ceftin.
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