2 tiny white matter lessions

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KristaM
Regular Member


Date Joined Sep 2010
Total Posts : 198
   Posted 11/2/2010 8:58 PM (GMT -6)   
Hi everyone,
 
I normally post on the fibro board as I was recently diagnosed with fibromyalgia.  I have had numerous problems and can no longer work due to widespread pain in joints, bones, muscles, fatigue, dizziness, memory, concentration problems, etc...
 
For the longest time I thought I had MS because it's in my family and I have alot of the symptoms, but not all.  My gp assures me I do not have MS, but I just saw the MRI I had done this past January and it says "evidence of 2 tiny supratentorial subcortical white matter lessions, nonspecific in appearance."  Should a neurologist not be doing further testing for MS if lessions are present?  If so, what testing would a neurologist normally do after the MRI?
 
Thank you very much,
Krista

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/2/2010 9:45 PM (GMT -6)   
Hey Krista,
 
I love that name.  It was my best friend's name when I was in first grade. 
 
I would definitely follow up on a second opinion.  Was the neurologist that you saw an MS specialist?  If not, then that's where to start.  I was initially diagnosed with a stroke by a neurologist that was a stroke specialist.  He then withdrew that diagnosis and gave me an initial diagnosis of MS.  He then sent me to an MS specialist at an MS center.  That's where MS was confirmed.
 
My tests were: MRI of brain, cervical spine and thoracic spine, evoked potentials (hearing vision and lower extremeties), lumbar puncture, blood work to rule out other causes, and a complete neurological exam of reflexes and responses. 
 
Good luck on your quest for answers.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/2/2010 9:48 PM (GMT -6)   
Oh one more thing, if you happen to live in Canada, getting an MS diagnosis can be difficult.  MS is very expensive and the government doesn't jump on that costly treatment unless you have SEVERAL lesions and you are clearly progressing. 

KristaM
Regular Member


Date Joined Sep 2010
Total Posts : 198
   Posted 11/2/2010 9:58 PM (GMT -6)   
I am in Canada...I'll keep that in mind!

I've had so many basic neurological exams lately and they always say they don't see any problems. No, I don't think the neurologists I saw were MS specialists, but I'm not sure. But these 2 neurologists I've seen recently have not seen my MRI results...only my gp has, and she thinks it's fine. I think I will call the neurologist I saw last week and ask him to look at my results.

Thanks for your response Gretchen! Take care!
Fibromyalgia Oct 2010, Chronic Pain and Myofascial Pain, Dizziness, Degenerative Disk Disease L4/5, L5/S1, Pelvic Inflammatory Disease

Lyrica 100 mg 3x daily, Hydromorphone, Vit D & Multi
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