does this sound like ms??

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daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 11/4/2010 4:37 PM (GMT -6)   
over the past year I have been having severe leg pain. We have done MRI's on my lower back, knees and hips and nothing has turned up. I do have SLE and fibro. Over the past year all we have found is that steroids help but only strong ones.
The pain seems to be in my calves, side of hips but the butt muscle, and in the front and back of thighs. Stretching helps a little but the pain always comes right back. My legs go numb real easly and tingle at times. The pain feels kinda like im stretching beyond my limit of flexablity but wont reliese. muscle relaxers do not help at all. I do not have much of a short term memory but i have been on a lot of pain medication so I do not know if it is from that or brain fog from the lupus. When I was in pain management from this pain they started me on Gabapentin at the max dose and at night I would have weird muscle twitching but only when I would relax. I dont know if this was from the medication or something else. I always forgot to mention it to my doctors. I am now on the min. dose and I still get it from time to time. What are your symptoms? who diagnoses MS? please help I am at my wits end with this severe leg pain :'(. I am being labeled as a drug seeker from all my visits to the ER and no one can seem to figure out what is going on with my pain.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/4/2010 7:29 PM (GMT -6)   
If you suspect MS, then you should go see a neurologist.  Most people try to find an MS specialist.  That is who gives an MS diagnosis.
 
The typical tests may include: MRI of brain, c-spine, t-spine, evoked potentials (hearing, vision, extremities), a lumbar puncture, blood work to rule out other possible causes, and a thorough neuro. exam of reflexes and responses. 
 
 
This is a website that discusses the diagnostic process for MS.
 
Symptoms for MS are extremely varied.  The symptoms an MSers experience depends upon what parts of the brain and spine have been damaged.  MS symptoms also are shared by many other diseases and disorders.  It can be a long, drawn out process to get a diagnosis.  People can go years before getting an official diagnosis. 
 
Symptoms of MS may include: numbness, tingling, balance problems, vertigo, coordination problems, tremor, fatigue, vision problems, hearing problems, swallowing problems, bowel and bladder problems, spasticity, paralysis.
 
 
 
 

daniJav
Regular Member


Date Joined Jan 2010
Total Posts : 82
   Posted 11/4/2010 8:14 PM (GMT -6)   
I do get all sorts of pain in my legs, I do get numbness at time and tingling also. When I am on pain medication I get a zapping pain that shoots down my shin next to the bone. I have real bad fatigue, I have to take 5 hour energy just to be able to get out of bed. In the past year I went from having 20/20 vision to needing glasses, but I am also on Plaqunil which can cause vision loss also. I dont know what you mean by bowl problems but one day ill be constipated and other ill have the runs (TMI sorry). I am not paralised or anything but some times at night when I try to go to sleep I have eposides where I can not move. It only lasts a second or two but I feel like someone is on top of my holding me down. This has been going on about once a month for over a year. I didnt want to tell a doctor and have them think that I am crazy. I dont know if any of that is related to MS but it is what has been going on since I have had this leg pain. I have had real low BP also. It averages around 90/70. I have a appt with a neurologist at the end of this month and I hope that he can figure out what is causing this severe leg pain because no one else can.

This pain has been so bad at times that I thought about sucide just because pain is all that is on my brain. It is over whelming. When I get to that point I go to the ER and I get short term relief but because no one can seem to find the cause of my pain I am being labled as a drug seeker. I dont even want pain meds all I want is strong steroids because that is the only non narcotic relief I get. So any one out there that can relate or has had simular pain to give me a glimps of hope, please give me advice!!! I am at my wits end after a year of terrible severe pain and no cause has been found.
Dani,
SLE (lupus), Fibromyalgia, and a solitary kidney
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