newbie and have a few questions???

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gailw
New Member


Date Joined Nov 2010
Total Posts : 1
   Posted 11/16/2010 12:26 AM (GMT -6)   
Hi all, I've just recently had an MRI of the brain, originally looking for a pituitary adenoma due to my symptoms.  But, the MRI showed numerous lesions that are indicative of multiple sclerosis.  My general doc is now referring me onto a neurologist, to determine what type of MS this is.  These findings have come to light over the past two days.
 
Has anyone else found out that they had MS thru an incidental finding on an MRI?  I have had symptoms but thought they were either something else, or were just a part of aging?  (I'm 40). 
 
I aksed my doc today if these lesions could be anything else, and she said no.
 
Until yesterday morning, I had no idea what MS was exactly.  Now I'm on a huge learning curve....
 
Thanks in advance.. :-)

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 11/16/2010 7:50 PM (GMT -6)   
Hi Gail,
 
I was diagnosed after symptoms drove an investigation.  It seems like you had some symptoms if you were looking into a pituitary adenoma.  Did you have facial numbness or double vision?  These are symptoms shared with pitutiary adenoma.  It does happen but certainly it is more common that you have symptoms that eventually lead to MS.............not MS lesions on an MRI leading to a diagnosis.
 
First of all, you can have lesions without having MS.  Lesions can be caused by migraines, Lyme Disease, venous abnormalities, infections etc.  However, there can be a certain look to MS lesions. 
 
If you are at all questioning the diagnoses, be sure to get your MRI on a disc and a copy of the report and then go for a second opinion.  The best way seems to be by going to an MS specialist. 
 
If you indeed have MS, then it seems you may have a rare early diagnosis.  This means you can get on treatment early and hopefully it will slow down the progression of MS. 
 
Please make sure you have your insurance in place with good prescription coverage before you allow MS to be added officially to your medical file.  Check out this site for more information on the diagnostic process for MS.  Good luck to you! 
 
 
 

AVFMkath
New Member


Date Joined Dec 2010
Total Posts : 11
   Posted 12/7/2010 8:37 AM (GMT -6)   
Yes I thinik the insurance suggestion is a good one although getting as NEW insurance could be difficult since they always ask if you've had investigations.

Anyway, yes it is a steep learning curve. There are so many things to know but also so many places you can get help.
I suggest you sign up with several forums and also with a lot of stuff that uis available on Facebook.

It's a terrifynig stage to be at but it's not a terminal illness and, like the previous commenter, I've had it for 22 years. You need to learn to change how you do things but don't let it stop you.
Kath Ibbetson has had RRMS for 22 years.
Become a fan of my Facebook Page www.facebook.com/AVoiceForMS
There is loads of information on my blog www.avoiceforms.com
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