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Safierdrgn
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/24/2010 10:31 AM (GMT -6)   
I was diagnosed with MS in 2004 and I've been having extreme pain the past few years.  Pain that keeps me from getting up and doing things.
about 6 months ago I moved and had to find a new doctor...I have yet to find a good one.  My previous doctor(halfway across the county now) put me on Lortab, which I took every 3-5 days as needed for 5 years...that helped me quite a bit.  My current neurologist won't give me anything for it because she feels that I'm just treating a symptom.  That confused me because isn't that all we have?  Treating symptoms?
 
I've never been great with talking to people so I guess I can't accurately describe my pain.  She gives me this long list of "types of pain"..gnawing, burning, crunching etc.  I told her I just feel like I've been beaten with a baseball bat...evidently that isn't painful enough to warrant getting anything for it.
 
So I've been eating advil and ibuprofen like candy..I don't know what else to do or where to go.  It's really effecting my life, causing me depression and making my MS worse.
 
Does anyone have any suggestions on how to talk to a doctor?  Should I go to someone besides a neurologist for my pain?

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 11/25/2010 8:11 PM (GMT -6)   
Hi Safierdrgn,
 
    Pain is unfortunately hard to see and hard to describe sometimes as you are finding out.  I've found that I get better results with doctors telling them what the pain is keeping me from doing rather than trying to describe it.   Quality of life and HOW it is affecting you seems to make them have a better comprehesion of what you are feeling.  Have you tried a pain management clinic?  Best of luck, I hope you find some help.

Motown John
Regular Member


Date Joined Jun 2005
Total Posts : 475
   Posted 11/28/2010 6:48 AM (GMT -6)   
Good Morning
 
If you are looking for a new neuro....maybe check with your state MS Society for a refferal?
 
All the best....John from Motown

Safierdrgn
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/28/2010 8:57 AM (GMT -6)   
My current neuro is at the MS clinic in my city. Right now I'm having a flare that's causing me not to be able to feel the entire right side of my stomach, it's making me miserable and my neuro won't do anything about it because "it's not life threatening"...and she doesn't like to use steroids so she likes to just wait it out.

AVFMkath
New Member


Date Joined Dec 2010
Total Posts : 11
   Posted 12/7/2010 7:27 AM (GMT -6)   
Pain is unfortunately one of those things that is not well recognized in MS and yet so many people experience it. Some people find taking Capsaisin helpful but as it's a nutritional supplement it can take 1- 3 months to kick in.

I wrote a few article;es about pain which you can find on my blog - just go down to the category search box and select pain then you'll have all of them brought up. Please leave a comment about your experiences as others need to share.
Kath Ibbetson has had RRMS for 22 years.
Become a fan of my Facebook Page www.facebook.com/AVoiceForMS
There is loads of information on my blog www.avoiceforms.com

osu217
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/18/2010 7:38 PM (GMT -6)   
Hello Safierdrgn-
 
I have two suggestions for you.  First, it really sounds like you need to find a new doctor!  Having someone who you can easily talk to and who is willing to help you make your life better in any way possible is essential to MS patients.   After being diagnosied, I began seeing a doctor in Columbus, OH.  He was known for his work with MS but after a couple of years I felt that I just didn't mesh with him.  I decided to try a clinic in Akron, Ohio after my uncle, who also has MS, recommended it to me and it was the best thing I ever did!  I love the Dr. I see now because I know he listens to me and cares about my well-being.  I am not just another patient that comes in and out and that means a lot to me.  You must find a doctor who listens to you.
 
Second, if I were you I would look for a clinic that is especially for Multiple Sclerosis.  Not sure where you go now, but I think an MS clinic is much better than simply going to a neurologist. 
 
Good luck and let us know how it goes

NorthSnowflake
New Member


Date Joined Dec 2010
Total Posts : 1
   Posted 12/22/2010 10:46 AM (GMT -6)   
Greetings, Safierdrgn, from Canada!  I came across your post and felt compelled to respond to you.
 
I too have experienced this Neuropathic Pain since 2004.  It has only increased in intensity and has become more frequent over the years.  The drug(s) mentioned in your post and others' replies I haven't even heard-of before.  I've tried all the pharmaceuticals prescribed to me over the years (such as Lyrica, Nabilone).  I was sent to a Pain Clinic and was even prescribed Methadone!  Did nothing but make me sick to my stomach and I could still feel the pain.  The only medication I have tried that helps is Hydromorphone (which is Dilaudid).  My system can't handle too much and I only take 3 mg when a flare begins.  Also, I find medicinal marijuana to be about 60-70% helpful.  Yes, I know it's different in Canada when it comes to drugs and the health industry.  I have also noticed that elevating the body part that is in pain does help ... but who wants to just lay there, right?  I'm a firm believer that addiction to anything comes down to what you're using it for.  One of the best books I have found is called Healing Multiple Sclerosis (by Ann Boroch).  She has MS quite bad and turned herself into a Naturalpath.
 
Anyhow, just wanted to share my own experience and let you know that I can relate to some of what you're saying.  To this day, the only explanation of my pain was best described by a Neurologist when he said in a letter, "It's like a balloon inside inflating and deflating".  Because, to me, it feels like someone is inside pushing all my veins and muscles as far as they can go until it's unbearable then it's released... then pushed etc. etc.
 
I really hope something I've said here might help you a little bit.  Take good care of yourself and try not to be hard on yourself either.
 
Happy Holidays,
Samantha
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