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Bad Mojo
Regular Member


Date Joined Aug 2010
Total Posts : 70
   Posted 12/24/2010 12:27 AM (GMT -6)   
Has anyone with MS had episodes that include seizures?  I don't have hardly any of the normal MS symptoms but when I do have relapses, they include full body seizures.  I have been diagnosed with MS by an MS specialist.  He said seizures are rare in MS, but they do occur.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 12/24/2010 11:28 AM (GMT -6)   
Hey Mojo,
 
That is exactly what I have heard..............."siezures are rare but they do occur with MS."  I am sorry!  I am sure that is completely miserable.  I hope your doctor can find a way to get those under control. 

michele17
Regular Member


Date Joined Jun 2009
Total Posts : 21
   Posted 12/25/2010 11:33 AM (GMT -6)   
I suffer from M.S. and Epilepsy as well. The seizures were my presenting symptom as well. Initially

I had grand mal seizures, now I suffer from simple partial. For me, and probably for you as well,

I am not able to drive. For seizure control I have tried a few different meds. Presently, I am taking

Lamictal. The seizures are not fun. I have an aura before my seizures. This gives me a chance to

prepare for the seizure. I crouch down on the ground, to prevent a fall and call for somebody to dial

911. Carry Ativan wherever you go to prevent another seizure. Educate yourself and your family

and friends about the first-aid that you would need if a seizure should occur.

Now you must see both a neurologist for M.S. and Epilepsy.

You are not alone in this. My defense is to educate myself. Hope that works for you.

Be well,

Michele17

M.S. (since 2002)
Epilepsy (2002)
Avonex(2002-2009)
Copaxone(2009-present)

Bad Mojo
Regular Member


Date Joined Aug 2010
Total Posts : 70
   Posted 12/25/2010 5:17 PM (GMT -6)   
I was able to keep my license with the help of a friendly doctor (who went to bat for me with the DMV), but the MS specialist I am seeing is reporting me again. Not sure how it will turn out this time. I can't imagine not being able to drive. I am only 44. How do you deal with not driving? I am single with no family close by to help...
I have not been diagnosed with Epilepsy. I get an aura too--I usually get about 5 minutes notice before it hits. I just started on Keppra and will start Copaxone after we ensure the Keppra has no major side effects. I am in good shape physically but started eating healthier and exercising more anyway. My biggest fear is dementia. I have already noticed significant losses in speech and memory ability and it is starting to effect my job. I started doing crossword puzzles and memory games at the advice of my doctor.
Thank you both, Gretchen and Michele. I read a lot of your posts Gretchen and they are always informative and uplifting. It's reassuring to talk to people that are going through this as well.

Merry Chrismas and Happy New Year!
Frank

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 12/25/2010 7:29 PM (GMT -6)   
Oh Frank!  I find the scariest part of MS is the cognitive damage.  This is what I have heard, real dysfunctional demetia is quite rare in MS.  Most of the cognitive stuff is just very annoying..............word loss, short term memory loss, a sense of being overwhelmed in certain situations (very noisy, lots of conversation etc), concentration and focus.  I also find myself much more irritable and cross.  I noticed cognitive junk right away and that scared me to death!  However, I am very happy to report that it is not progressing rapidly if at all.
 
I do take adderall to help with the mental fog and concentration.  I have found that if I am more organized and make lists I do better.  When I have lost a word, if I picture what I mean, I can find that word faster.  This tends to only work with certain words of course. 
 
Ask for a cognitive evaluation if you wish.  This is good for a baseline and its helpful for designing cognitive therapy to help with the cognitive issues. 
 
They say keeping your brain active really does help.  They also say, doing something outside of what you usually do really challenges.  For example;  if you consider yourself not a musical person, try learning to play the guitar.  I like thinking puzzles.  I also love "cup stacking".  Google that on youtube.  Cup stacking works both sides of your brain.  I also taught myself to juggle.  I suck at it but I can do it a little. 
 
Michele has given you some good advice too.  I hope you can keep your license!!!  It seems if you have nearly five minutes of warning then you seem pretty safe!  But I don't know anything about that. 
 
Good luck and take care.

michele17
Regular Member


Date Joined Jun 2009
Total Posts : 21
   Posted 12/25/2010 9:07 PM (GMT -6)   
Neither my M.S. or my Seizure specialist have reported my condition to the DMV. In order to resume driving I must go without a seizure for one year. Once I lasted six months, but that 's about it.
I live in the suburbs. Not driving is torture. My house is located on a steep hill. Although I am mobile, I can't negotiate the hill. Getting overheated, fatigue, and stress have all been triggers for seizures. Fortunately for me, I am lucky and have a very helpful husband, three children ( 30,27, and 20 years old). I have many close friends and four sisters. As I'm sure you could imagine, relying on others is not fun. Recently, I applied for Para-Transit. I was approved and can get around a lot easier without having to rely on others! Maybe you would be eligible as well.
Healthy diet and plenty of exercise are great for both body and mind. My favorite is yoga. I recommend it.
good luck!
Michele17
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