Posted 1/20/2011 1:37 PM (GMT -6)
Hi everyone, I need some help here. I dont no where to turn. A year ago, is when it all started. Out of the blue I fainted, I was taken to ER and everything seemed to be normal. Three days later, is when my pain started. NERVE PAIN, is my main complaint. I had pins and needles feeling in my face sooo bad, it was like I felt every nerve. Then I started having this horrible stabbing, numbing sensation on my face, right side, lower cheek, pain so bad it stops you in your tracks. Soon after that I suddenly started seeing spots in my right eye, sometimes if I look to the left, its blurred. Then, my back started hurting, somtimes my upper back, which made my shoulders and neck ache. Sometimes its my lower back, which will affect my hips and legs. Then nerve pain started all over my body, pins and needles, burning, stabing. I have extreme fatige, bad joint pain in my knees, hips, right elbow. I have bad stiffness, when I wake up, or if I sit too long. I also leak urine (embarrasing)
My doctor thought for sure I had MS as soon as I said I get stabbing pain in my face. I went in for a brain MRI, which turned out to be normal. She referred me to a Neoro. The Neoro said I had Fibromyalgia. I dont have insurance so they dont want to run too many tests, and doc visits they seem to always be in a hurry. Im on 3000 mg of Gabapentin a day, 25 mg Amitriptline, and Melaxicam for joint pain. I was told 3000 mg. a day of Gabapentin was a high dose, somtimes I feel I need it increased more.
Im going to see a Reumy doc on Jan.31, my regular doc wants me to go on Lyrica and I dont have a good feeling about it. Dont mean to keep going on and on. My question is... I feel like Im going through something other than Fibromyalgia......have any of you had these symptoms? I go on Fibro board and it seems like I have more nerve pain than others.
Thanx, Tara (38 yrs old)