Could this be MS or fibromyalgia?

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pink blobs
Regular Member


Date Joined Jan 2011
Total Posts : 54
   Posted 1/30/2011 10:04 PM (GMT -6)   
Hello. I'm a 26 year old female and for the last 7 months I have been experiencing strange symptoms that seem neurological in nature. I have a family history of neurological disorders on my mother's side of my family. My mother has epilepsy, her father had parkinsons, and somewhere in the family line there have been one or more cases of MS. I have RLS and sensitive to medications that cause tardive dyskinesia.

I once experimented with psychedelic mushrooms when I was 22. During my trip I experienced spinal pain, urinary incontinence and visual symptoms resembling visual snow and scotoma. Ever since that experience I have been seeing transparent black spots and spectral colored lights in the shape of zigzags, blobs, specks and resemble sparkling snow, which last for a few seconds. I shrugged it off as a hallucinogen flashback that would probably go away after time. However, the symptoms never stopped. In fact, while typing this I have just experienced a few of these strange visual phenomenon. I fear that it may have caused damage to my central nervous system.

Over the summer of 2010 I started having episodes of urinary problems, reoccurring UTI's, strange rib and back pain, hot sensations in my neck and shoulders, blurry vision, feeling faint and/or feelings that I can only describe as an impending seizure or a stroke, despite the fact I cannot verify I have ever had a seizure. It was nothing like a panic attack, not even similar to severe panic attacks.

These symptoms have progressed over the months.

Now I have severe nausea and/or less frequently vomiting every morning, sudden unexplainable constipation despite the fact I've had IBS with chronic diarrhea for 10 years, tunnel vision, blurry vision, grayish vision, double vision, visual hallucinations of colors and lights, eye pain, one-sided headaches, feeling like I'm going blind, sensations of hot and cold everywhere from my face to my arms and chest, numbness and tingling in my face, arms and legs, weakness in my arms and legs, burning pain in my arms(the feeling you get after excessive weight lifting or exercise), rapid and pounding heartbeat, palpitations, shaking, twitching in my arms and back, occasional involuntary noises, zapping sensations in my spine, weight loss, confusion/very poor short term memory/concentration, uncoordinated movements, loss of balance, dizziness, feeling faint, fatigue, shortness of breath, difficulty breathing (where must literally force myself to breathe for a few minutes, not hyperventilation), high and low blood pressure, chest tightness and pressure in abdomen that is not asthma related(girdle band-like pain), feeling faint upon standing, easy bruising, temporary inability to urinate or unable to feel the need to go with a few instances where I almost had an accident, delayed gastric emptying(stomach paralysis) and facial flushing.

I've been experiencing most of these symptoms everyday. I feel weak, especially in my arms and legs and out of breath so much that it's exhausting to leave the house. I have a constant fear that I will faint or vomit in public.

I can only explain my symptoms as a failure of my brain to communicate properly with my bodily systems. These symptoms have been slowly progressing every day, I am afraid I will have to stop working.

My doctor thinks I may just have fibromyalgia and anxiety, which has not been verified by any tests--I'm very skeptical of the diagnosis. I have had anxiety for 26 years and these symptoms are nothing like panic attacks I've ever had, plus my Xanax seems to help only very slightly, even after increasing the dosage.

I had blood work done including a complete blood count, an ANA test which came back negative, a negative thyroid test and a negative rheumatoid factor test.

I just had an EEG last week and waiting for the results. I have a feeling it may be negative. However, during the strobe light part of the test I started twitching a lot in my arms and back. It was very uncomfortable. I was also having visual disturbances before and during the procedure. I wonder if they might have been recorded or not.

I know I cannot get a diagnosis on this forum and that only a doctor can verify a disease. I'm wondering what a negative ANA test or EEG means for a diagnosis of MS and if my symptoms even resemble MS. My doctor seems like she's calling it quits and wants to write it off as fibromyalgia and anxiety, and I don't feel it's helpful. Any suggestions?

By the way, I was tested for diabetes and came back negative and I don't consume any artificial sweeteners, as I am allergic to them.

Post Edited (pink blobs) : 1/31/2011 12:30:19 AM (GMT-7)


mimimoomoo
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/30/2011 11:35 PM (GMT -6)   
So sorry to hear about all your health issues. It must be very worrying for you.

I have two things to suggest.

1. do you ever use artificial sweeteners (asparatame, acesulfame K, Splenda etc etc). These can cause neurological symptoms in sensitive individuals (I used to drink Diet Coke and would always feel giddy and spaced out and my brain not working afterwards - I stopped as soon as I realised the link).

Apparently quite a lot of people were diagnosed with Multiple Sclerosis and it turned out they were allergic to these chemicals.

2. A Herbalist in the UK works with MS patients and has had a lot of success with herbs and a diet. His name is Gerald Green and his book is Breaking Through the Untouchable DIseases (on www.amazon.co.uk - can be shipped anywhere) the diet thing is really important. Doctors tell you that diet isn't important (unless you have diabetes or heart disease) but the alternative health community tell you it's really important. A diet high in sugar and low in good nutrients will eventually lead to some form of disease. So if you eat lots of dairy, wheat and sugar and not enough fruit and veg that can be at the root of your health issues.

The diet is quite tough as it's very low carb - you need to cut out all sugar and grains for a while - but you should see improvement in a few weeks so it's probably worth trying to see if it helps.

If you are not having any joy with the medical profession have you tried any alternative health practitioners? Try and see someone who is recommended by someone you know, or a recommendation by someone on this board.

If you are still suffering with anxiety I suggest you try EFT (emotional freedom technique) - there are many good practitioners who can help with anxiety. I had agoraphobia and social phobia for 12 years - I tried everything to cure it psychotherapy , hypnotherapy, acupunture, medication, relaxation, and nothing helped me. I spoke to a EFT practitioner in San Francisco on the phone for an hour - and had one follow up session and the phobia was gone and all my anxiety as well and it never came back (that was 10 years ago).

I know many people self medicate for anxiety with cannabis but again if you are sensitive to the chemical in the plant it can make matters worse rather than better. Some of the symptoms you are mentioning could be related to cannabis use. I'd suggest stopping that for a week or two and see if that has any effect.

Good luck


Mimi

mimimoomoo
New Member


Date Joined Jan 2011
Total Posts : 4
   Posted 1/30/2011 11:36 PM (GMT -6)   
An expert on Fibromyalgia is Dr John Lowe. You can find him online. His website may give you some good info.

pink blobs
Regular Member


Date Joined Jan 2011
Total Posts : 54
   Posted 1/30/2011 11:39 PM (GMT -6)   
mimimoomoo said...
So sorry to hear about all your health issues. It must be very worrying for you.

I have two things to suggest.

1. do you ever use artificial sweeteners (asparatame, acesulfame K, Splenda etc etc). These can cause neurological symptoms in sensitive individuals (I used to drink Diet Coke and would always feel giddy and spaced out and my brain not working afterwards - I stopped as soon as I realised the link).


No, I never consume artificial sweeteners as I am allergic to them. Aspartame makes me ill, so I avoid it at all costs. I have also went most of the year cannabis free, my problems surfaced after I hadn't been using it for half a year solid. I only used it for about a month in the last 12 months.

Post Edited (pink blobs) : 1/30/2011 9:43:53 PM (GMT-7)


pink blobs
Regular Member


Date Joined Jan 2011
Total Posts : 54
   Posted 1/31/2011 10:39 PM (GMT -6)   
mimimoomoo said...


1. do you ever use artificial sweeteners (asparatame, acesulfame K, Splenda etc etc). These can cause neurological symptoms in sensitive individuals (I used to drink Diet Coke and would always feel giddy and spaced out and my brain not working afterwards - I stopped as soon as I realised the link).

Apparently quite a lot of people were diagnosed with Multiple Sclerosis and it turned out they were allergic to these chemicals.



Just out of curiosity, what were your first symptoms of MS? When you talk of feeling spaced out and having poor cognition, it sounds a lot like what I've been having. That was one of the first things I noticed when I started feeling ill. That and visual problems and cold/numbness in my face and extremities.

littlehutton
Regular Member


Date Joined Aug 2010
Total Posts : 96
   Posted 2/1/2011 6:10 PM (GMT -6)   
Have you considered Lyme Disease?

If you go to the Lyme board, at the top there is a section on symptoms, I think you will be very surprised how many of your symptoms are listed.

I was diagnosed with Lyme in November, after being in limbo land for quite some time, I went down the MS route as well for a while.

I hope you find some answers soon

Best wishes

LH
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