Question about remissions

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twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 2/15/2011 4:21 PM (GMT -6)   
I am newly diagnosed and have a question. Can't get a straight answer from my neuro. I had left side muscle weakness for about 6 months which my neuro says was due to a relapse. Now on copaxone and muscle weakness is gone. My fatigue is only about 25% better and I still have cognitive issues.

I was under the impression that during remission I wouldn't be having symptoms. Is this true? I do feel somewhat better, but still can't work and get very fatigued after say grocery shopping or doctors appointments. Can this still be considered a remission???

Also my neuro is suggesting that my cognitive issues are due to depression and I thought cognitive issues were a MS symptom.

thank you.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 2/15/2011 7:14 PM (GMT -6)   
It is a rare person who gets back to normal after a relapse.  Most MSers get to a new baseline after a relapse.  They have residual symptoms that are the result of brain or spinal damage.  These residual symptoms may fluctuate a bit but they become the new normal for the MSer. 
 
MS is considered progressive.  It will get worse over time with the patient adding more and more symptoms to manage.  I am sorry to hear of your diagnosis. 
 
Cognitive issues are a problem with people who have MS.  It is one of the main reasons MSers often don't work. 
 
If you are not seeing an MS specialist, you may want to consider it.

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 2/16/2011 6:20 AM (GMT -6)   
I am seeing an ms specialist. He does research and is considered one of the best in the area. I'm not completely happy with him, but from what i understand, the others around here are really poor physicians.

This doctor focuses on certain symptoms and seems to not want to discuss or just dismisses others. Kind of frustrating.

I've been off work for many months now. I need to file for disability due to my fatigue and cognitive issues.

thank you for your response.

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 3/16/2011 11:03 AM (GMT -6)   
Thank you for your response Aldez. The reason for much of my confusion about symptoms is that my neuro seems to think I should be able to work but there is just no way I can do that. I've been trying to go back to work for a year now, and everytime I do, I crash for a few days to a week after only a partial day of working. I finally quit my job on Wednesday and started the process for disability. My boss has been so patient with me, but after all this time, I know I won't be able to do it.

My neuro says my fatigue stores have been depleted and it would take time to restore. But from talking to others with the illness, that doesnt' appear to be the case for most people. I'm really mad at him for giving me false hope.

I am a bit better and my muscle weakness is gone, but I still have the fatigue and brain fog to deal with and I have to pace myself very carefully if I want to avoid crashing.
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