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haileys letter
Regular Member


Date Joined Nov 2006
Total Posts : 296
   Posted 2/19/2011 11:42 AM (GMT -6)   
 
 
  I am worried about my health. I know something is differrent. Back in July I had a reaction to a bite on my leg and soon after that I had some strange things happen to me. I had two different episodes of extreme neck pain and leg pain to the point of passing out. My husband was home and he is a paramedic and he said he thought I had a small seizer.  Since that episodes I have had a few times of strange nerves sensations that go through my body.  Extreme behind the elbow pain, ear pain, hip pain, leg pain, general all over body pain. I remember one time I had this feeling of tightness around my waist, like a paralize feeling. But it went away within a few minutes.
 
Itching on the skin on the left side of my neck, and the newest symptoms a strange overcast of my vision on my left side. I also had an episode of four days straight I could not go to the bathroom, with drinking fiber drink and mylalax. I was scared and thought I had colon cancer , Had a colonoscopy and all is fine.
 
 I have always had strange sweating issues. To the point things would be soaking wet that I touch. This has gone on for years. I had back surgery after the birth of my daughter in 2000 and I have always wondered if it was from the fact that my doctor tremendously yelled at the nurses at the hospital that they gave me the epideral in my back way into my labor. I remember he was furious at them.
 
 So, since all of these symptoms have been happening. I went to a neuro,  mri done, they found a small lesion on the right side of my brain. It was two small to say whether it was related to demyelination. Mri of spine and neck negative of lesions. Emg done small nerve lesion found of left side of my arm.
 
 Started having extreme hip pain, had a mri done. they found two cysts within my bones , but they do not think this could cause pain. I am really sick of going to each doctor , One day I have pain on one part of my body , and then another day anothe part.
 
 The first neuro I saw after the mri of brain, told me it could be early Ms , the other neuro, told me that MS people do not have pain. It said that he has been a neuro for 30 years and people with MS do not have pain. So, then I started thinking maybe I have fibromyagia I am just sick of this.  Now I have to go to the eye doctor and see what is going on with my left eye.
 
 The medical bills are really starting to effect us, but I am scared to not go and see what is wrong with me , in fear that something is being missed. I would love any advice any has. and what step to take next. Do you think it could be MS ?  Some days I feel like my big toe is immerged in hot water and I also have numbness and tingling in my legs arms and back.
 
I am 40 years old with three children at home. I just want to feel better. Also , my symptoms get worse right before my menstratution. My husband has been worried about me , which makes him unable to sleep , he said I wake him up with twiching of my legs at night. I feel like I sleep okay when I wake up in the morning.
 
Thank you for listening. I really appreciate it.

haileys letter
Regular Member


Date Joined Nov 2006
Total Posts : 296
   Posted 2/19/2011 11:46 AM (GMT -6)   
 
 
 Just to add that I did have a blood test done to check for Lyme disease, it came back negative. Thanks

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 2/19/2011 3:58 PM (GMT -6)   
You need to revisit lyme disease.  If you feel this all started with a bug bite, then it may not be MS. 
 
Don't return to the doctor who said MS doesn't cause pain.  He obviously doesn't know what he is doing.  MOST people with MS have pain in some fashion. 
 
Please post this on the lyme board here and see what you get. 

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 2/20/2011 4:04 PM (GMT -6)   
Any of these symptoms you mention could be lyme disease. Neurologists do not understand lyme. It is a controversial disease and to rule it out you would need to see a doctor specializing in the illness. The best test is a western blot by Igenex. Because this started after a bug bite, I would suspect lyme.

I also do not get when Neuros say MS people don't have pain. I hear from many with MS that pain is a symptom.

I hope you find some answers soon. It is so difficult to be so sick and not have any answers.

haileys letter
Regular Member


Date Joined Nov 2006
Total Posts : 296
   Posted 2/22/2011 10:34 PM (GMT -6)   
 
 
 Thank you both for answering me.
 
 I appreciate it.
 I am going to read more about Lyme disease. I am going to post over on the lyme board and see what others say about the lyme blood test I had.
 Thank you again.

haileys letter
Regular Member


Date Joined Nov 2006
Total Posts : 296
   Posted 3/2/2011 7:06 PM (GMT -6)   
 
 
  I have a question. I went to the eye doctor to get the strange vision looked at in my left eye. The nurse first shined a light into my eyes on the eye that has been bothering me I saw blackness where the bright light was. I did see some of the light around the blackness that I saw. The eye doctor that did the exam , said that he may have seen slight inflammation of the optic nerve on this eye. I am going back on March 7 to have a visual aid test done. He actually talked to me about MS and told me that there are many treatments for it. He himself has MS . I told him how I have been experiencing all the symptoms and how the one neuro told me that MS does not cause pain. He immediately stopped me in my sentence and said that MS does cause pain.
 
 So, shortly after they shined the light in my eyes I began having involuntary twitches of my legs. He noticed them and I was pretty overwhelmed with him telling me that he may of seen inflammation on my optic nerve, plus I figured maybe it was just my nerves, after him talking to me about MS. Well, the twitches that started after the eye exam have not stopped and actually are sometimes my whole body now. There is no pain with them, just a uncontrollable twitch.
 
 Could this of been caused by the light shined in my left eye if my optic nerve was inflammed? Will they go away? I called today to get another MRI done on my brain? I really don't understand this. I am scared that these involuntary twitches will not  get better. I do not go back to the neuro until March 17 Should I wait that long?
 
Thank you for your help.

haileys letter
Regular Member


Date Joined Nov 2006
Total Posts : 296
   Posted 3/4/2011 9:11 PM (GMT -6)   
Thank you everyone. I appreciate the good thoughts. Just a quick update since I am very tired. I have been in the hospital the last day and a half.
My husband ended up taken me to the emergency room since the involuntarty twitches turned into full body jerks. It was really bad.  So, in the emergency room, I had two doctors do exams and me and they told my husband and I  that they were 99.9% sure that it was MS. I was then admitted and given Ativan to stop the body jerks. They continued through the night along with double vision and lost of some central vision on my left side. Woke up this morning and the body jerks were still there.  They did go away through the day. I have two different neurologist come in and do exams on me. I was able to do exams well. I did have a momentary problem walking on my toes and heels, but it was more of a "my brain taking a minute to registers to do it."
 
 Another MRI done  With and Without contrast and it was clear. The neurologist feels I DO NOT have MS. He  feels that my nerves are over reacting. and told me to take 1000 mil of Vitamin D a day. He reccommended Lexopro and Ativan if my nerves misfire again.  I am very glad that the test came back well. In the back of my mind I am wondering really what happened with me and everything that I have been going through.
 
 I am home now and will follow up with my family doctor? Any thoughts Thank you for your time.

jrdegitz
Regular Member


Date Joined Oct 2010
Total Posts : 33
   Posted 3/11/2011 8:27 AM (GMT -6)   
I don't know if I can be of any help but I went to my family doctor in January for health related anxiety. I thought I had MS as well. My doctor told me that with MS you usually have some pain and constant muscle weakness in some areas. Again, I don't know if this is true but he's the one who went to school for 8 years so I'll trust what he says. I really feel bad for what you have been going through. It must be very upsetting.

haileys letter
Regular Member


Date Joined Nov 2006
Total Posts : 296
   Posted 3/11/2011 11:52 AM (GMT -6)   
 
 Thanks for the good thoughts  Things are getting better than last week in the hospital. The neurologist told my husband and I that we all could have Multiple Sceloris in us. It depends on how we handle stress. I am not really sure. But he seems very confident about telling us that
 
 I have been taking ativan and lexapro and I am starting to feel back to normal. I have not gone back to the eye doctor , in fear that the body jerks will start again, since my left eye is still showing some central vision cloudiness. It is getting better though.
 
 the medicine is helping and I am going to follow up with my doctor again in two weeks. Basically they will keep me on the ativan and lexapro and see if I do well. Maybe I will not have another eposide at all. Lets hope.
 
Thank you again,
It helps to talk with people.
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