possible MS???

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kryss
New Member


Date Joined Feb 2011
Total Posts : 6
   Posted 2/23/2011 9:02 PM (GMT -6)   
I have a question not sure if any one else has ever experienced this. When I was first diagnosed (4 years ago now) the neurologist I had told me it was MS and when I asked him how he knew that for sure he told me that my MRI showed that I had 5 lesions and because of where of where they were located on my brain that it couldn't me anything else. He wanted me to start on Avonex and told me it was very expensive and that that meant getting injections, it was very overwhelming for me, so i went to get a second opinion. My new neurologist has sent me for other MRI's to see if any new lesions have appeared and so far they have not (thank God for that) but she has it written down now as possible MS. I don't understand how from one dr. to the next they can change things. She doesn't really explain anything to me she is very short and sweet when I go for my visits. I have had the EP test done and I think that came back ok I don't really know nobody has told me, it was my first Dr. that ordered that test. I assume it is MS because of where my lesions are and the symptoms I have and had had in the past. It started with vision problems that lasted a few days, now i am tired a lot and find i need to nap on a daily basis, I am also struggling with feeling nauseous all the time, so i am taking gravol daily. I am going to see my dr next week about this and still have to book my yearly check up with the neurologist. So anyway was just wondering if anyone here could maybe shed some light on this for me.

Thanks

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 2/25/2011 2:21 PM (GMT -6)   
Hey horse buddy!
 
It happens all the time.  It is amazing to me how my opinions about medicine have changed.  I always assumed....
"we know so much.  we are a very advanced society with a strong understanding of our bodies and medicine."  Now............"sheeeesh, no one knows anything.  They are all just guessing!"  I am sure the reality of this is somewhere in between. 
 
You can get a different opinion for every doctor you see.  It is not unusual for MS to be quiet for years at a stretch.  It's nice when that happens.  I am not a fan of a doctor that is short on time and or explanations.  You also need to request a copy of all your medical records.  EP results usually are quite easy to read.  Mine read "response to visual stimulation was abnormal.  Response to lower extremeties was delayed.  Response to auditory was normal."  If you want to know something, just ask.  Your doctor needs to take the time to answer those questions.  Simply say, "What exactly did my EP test report?"  If they don't explain well enough, tell the doctor you don't understand can you re-word it. 
 
My neurologist takes from 30-45 minutes per exam.  He always saves time for questions.  He's also arrogant and condescending!  No one is perfect but so far it's working for me.  I am not afraid to tell him how I feel about what's going on including his treatment. 
 
I hope something in this wayward ramble was helpful.
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