Possible MS or Caudia Equina..help !

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Date Joined Feb 2011
Total Posts : 7
   Posted 2/24/2011 3:17 PM (GMT -6)   
Hello everyone and thank you for allowing me on the forum.
firstly the symptoms-

3 years ago - apparent slipped L5 disc ( cycling up a hill ) causing severe pain for a Month ( not confirmed by MRI ), severe pain but resolved after 2 Months. Some urinary problems which was thought to be Prostate related ( PSA was normal ) and moderate Erectile dysfunction soon after ' slipped disc '.
3 years later !!
No back pain or sciatica pain ( at the moment )

Bladder - appears nueorgenic ( urgency ) and made worse with excercise

Bowel sphincter seems weaker ( difficulty controlling gas and I believe very slight leakage )

left leg - Sciatica pain - six weeks ago ( pain has gone after 4 weeks ) but has left leg with weakness and atrophy , reduced reflexes.

Right foot - periods of numbness and occasional sciatica pain in right butt.

Erectile dysfunction - started 3 years ago when i had 1st attack of pain. ( now less sensation in tip )

vibrations and fizzing in rectal area

wasting of muscle tone in left leg

Saddle area - less sensation on left side, normal on right side

Pain - Well the sciatica pain is gone, so no pain , everything elses stays.

**************************************** *****************

I went to the Emergency room out of desperation due to utter despair and was there for 5 hours and was seen by their assessor who then called for the Orthopaedic Consultant.

The bladder problem is not retention. They did a bladder scan which showed empty when my brain is saying full. Maybe linked to the nervous system, ie messages being sent from the brain / spinal cord so I get the constant urge to urinate.

However they found things that the GP'S overlooked, ie, loss of important reflexes on left side leg and wasting of muscle tone in leg ( even I didn’t notice that ). The other symptoms I have are erectile dysfunction ( 3 years ) and some difficulty keeping gas in and some pain and strange vibrations in rectal area.

I have some tingling in both legs and although I can feel the saddle area, the pin tests showed that the right side more sensitive than left. The left leg is weaker and has lost a lot of reflexes and the consultant noticed muscle atrophy which I didn’t realise.

The upshot is that the consultant was concerned but not overly concerned. I wasnt rushed in for immediate surgery or MRI ( as indicated by many medical establishments ). I have an apointment at outpatients in two weeks, no doubt to go through the embarassing probing again.................

The consultant said that he wouldn’t get the knives out just yet because he thought that surgery isn’t critical at this point, an option based on MRI findings.

I am concerned about further damage. Bearing in mind this started nearly three years ago and has been left until now / not taken seriously until I went to the emergency room who in their oppinion did not jump up and down and cart me in for immediate medical attention.

Thanks for reading and looking forward to your comments confused smhair tony

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Date Joined Jan 2007
Total Posts : 3571
   Posted 2/24/2011 9:06 PM (GMT -6)   
What did the doctors think this was all caused by?  Did one of them say Caude Equina syndrome or MS? 
While your symptoms could be symptoms one might have with MS, the fact that the onset began with a slipped disc seems to indicate you probably don't have MS. 
Your symptoms sounds down right miserable however!  I do hope you can get to the bottom (no pun intended) of this.  It seems ridiculous to have to have suffered with this for three years! 
Best of luck.  Please keep us posted.
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