MS YOUR GUESS IS BETTER THAN MINE! WHO THINKS YES?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Tired of feeling tired
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/28/2011 3:20 AM (GMT -6)   
 Hello everyone,
 I am a 27 year old female who has not felt right in a long time. I don't think that I'm even in touch with what "right" feels like any more, as sad as that sounds.
 about me:
 Migraine headaches (Had as long as I can remember)
 Lesion in left hemisphere of brain found at age 23(said to likely be gliosis)
 Central and obstructive sleep apnea(diagnosed at age 25)
 Narcolepsy(I don't agree with diagnosis)(diagnosed at age 27)
 Depression started around 21
 Anxiety started around 22
 Tingling, recent (lasting longer than 6 months, mainly in my back that lasts all day,moved up to back of neck)
 Muscle spasms in both feet,recent (painful but not both feet at the same time and not lasting longer than a few minutes)
 Hands locking in place, recent( thumbs bent inward toward palm, all fingers stiff and straight, very hard to bend) only happened once
 
 Okay so my neuro has ordered MRI on my brain several times going back since 2007 and nothing with my one lesion has changed. He has never mentioned MS. They have scanned due to the migraines which lead to the finding of the lesion which had been there sence 2005 or longer, unchanged.
 
 For the tingling, same dr. ordered an MRI of Cspine late 2010 and it was fine. On my next follow up with him, every three month because of the sleep apnea, I asked him again about the MRI because the tingling had not gone away. He referred me to a neuro surgon who said it was not my back causing me my tingling.
 
 So waiting again for my follow up with my neuro, on new meds for migraine preventative and energy now for narcolepsy, my tingling has become more wide spread, and ALL DAY, EVERY DAY now! My hands and face become numb as I work my way up to the full dosage of my migraine meds. The dr. said to expect that and I called the doctors assistant and they said it would go away in a few months of taking the meds. So a month and a half into new meds, my hands, out of no where, locked up on me at work. There were numb at the time, so it was not painful. I did have to leave work and go to the ER. The right hand let up on its own before I got there, so it was only locked about 45 minutes but the left one was locked for several hours. I was given meds to relax it. Bloodwork showed no reason for muscle spasms and my neuro called me on the way to the ER and said that it was not a reaction to the meds I am taking. I had another brain MRI and am waiting for the results.
 This ER visit was just a couple of days ago and already another spasm in my foot, while typing this.
 I'm still getting headaches but the are at least managable now.
 And even on a pill for energy, I still at times, feel so fatigue that I don't know what to do with but just cry.
 It's overwhelming and such a lonley road when you feel like no one takes you seriously about how you feel.
(replace this text with your code)
 
 

Tired of feeling tired
New Member


Date Joined Mar 2011
Total Posts : 2
   Posted 3/28/2011 1:25 PM (GMT -6)   
Hands locked up again at work today! Whats going on! Dr is going to see me today, is a couple of hours, even though my appointment isn't untill Thursday. We will see if we find anything out today. Any guesses? Anyone?

twingirl
Regular Member


Date Joined Feb 2007
Total Posts : 323
   Posted 3/29/2011 1:40 PM (GMT -6)   
I'm sorry that you are having these problems. It's a lot to have to deal with.

I don't have any answers for you, but wanted to wish you well in figuring out what is wrong and how to fix it.
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 2:53 AM (GMT -6)
There are a total of 2,974,027 posts in 326,233 threads.
View Active Threads


Who's Online
This forum has 161221 registered members. Please welcome our newest member, lavenderjacquelynn.
257 Guest(s), 1 Registered Member(s) are currently online.  Details
ambling