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HopeFull!
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/30/2011 12:43 AM (GMT -6)   
Hi everyone!
I am 41 and I was just diagnosed in December.  What landed me in the ER was hemiparesis on my right side.  What developed was excruciating pain.  Mercifully, it looks like this episode is over.  What remains is a ridiculous amount of fatigue and some cognitive issues.  I was hesitant to join a support group because I was worried about too many negative (and scary) stories, especially early on as I didn't know what to expect.  I am so happy to have found this forum!  To read what other MSers are dealing with - some the same, some worse, some better - has been like a breath of fresh air. And to read practical advise from people who know exactly what it feels like to deal with MS is a God send.  Thank you for all that you share.
Because of the fatigue, I have recently reduced my hours at work from 40 to 30 and only work 15 of those hours on site.  My employer has been wonderful.  Unfortunately, because of budget cuts, I will be taking another financial hit of about 10% - knocking me down by 35% in just one month!  Looking for a new job now but scared that I won't be able to manage 40 hours and since I am on Copaxone, the medical coverage is an issue.  Does anyone know if MS is a pre-existing condition that insurance companies won't cover?  I'm concerned about getting insurance if I leave my current employer and have a friend with Diabetes who says he can't get anyone to cover him - unless he is part of a group plan through his employer.

HopeFull!
Diagnosed December 2010

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 3/30/2011 8:21 AM (GMT -6)   
Hi HopeFulll,

I am so glad you have found comfort in this place. It's true that the first year or so is tough. I was just like you; I was afraid to know too much about what could happen. Please know that that part gets better. You find a happy medium and honestly, denial isn't a bad place to be. I kind of go with the "I will be fine, but just in case I will plan for the worst."

I still work full time; again, the first year was the hardest. After that, things got easier as I figured out how to manage most of my symptoms.

I don't have any advice for you on the insurance deal. I have insurance through work and am planning on staying where I am. I have heard it can be very difficult to get insurance with an MS diagnoses. Remember that Copaxone is very expensive!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

HopeFull!
New Member


Date Joined Mar 2011
Total Posts : 9
   Posted 3/30/2011 10:09 PM (GMT -6)   
Thanks for that.  I appreciate the encouragement.  I feel positive but I do wonder how much of that is due to being in a state of denial.   turn
Anyway, I will need to do more research on the Copaxone/med coverage deal.  I am with Kaiser and someone told me that they are the only ins that covers Copaxone.  I don't know if this is true but I'm not inclined to change as I am tolerating it very well right now.  We'll see.  Thanks!  
HopeFull!
Diagnosed December 2010

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 3/30/2011 11:32 PM (GMT -6)   
I have blue shield and copaxone is covered. I have been taking it for 4 and half years now without insurance issue. I am sure there are many insurance companies that will provide copaxone.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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