Hello...introducing myself...something going on in my body.

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~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 4/1/2011 9:16 PM (GMT -6)   
Hello everyone.   I have a complicated history,  but just a quick synopsis,  I have Diabetes type 2 and ulcerative colitis.  I  had surgery to have my colon removed and now have a jpouch.    Since then off all steroids,  and immunosuppressants,  but having body symptoms.   Have been having alot of numbness/tingling off and on in my feet,  hands.   Mentioned this to my pcp asking if it could be peripheral neuropathy from my diabetes.  He said its possible.   I have been complaining of feeling like my ulcerative colitis is flaring without the typical bowel symptoms, but the extreme fatigue and just feeling achy and sore, almost flu-ish.    Lately been having weird intermittent feelings of brief syncope,  almost like I'm sitting and the world shifts to the left and right real quick, but nothing else.  Also I feel my eyesight has gotten worse pretty rapidly,  needing reading glasses alot more now, and I have this annoying twitching in my right eye that occurs intermittently but quite frequently.   Then 2 days ago,  I freaked out!!  I had extreme tingling in my right leg and arm at the same time.    I work in a clinic and mentioned this to my team leader,  she checked my blood pressure and wisked me off to our urgent care.   Anyways,  I ended up in the ER and they consulted the oncall neurologist.      I had a head and neck MRI.   This is what it shows,    "Scattered white matter lesions.  On the right,  at least 8 most of them punctate.   On the left there appear to be at least 13.  There are really not three periventricular lesions,  but there are numberous juxtacortical lesions.".     They have recommneded i see a neurologist.   Not sure what to think of this....ideas?? 

Post Edited (~ChristieAnn67~) : 4/1/2011 9:23:53 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 4/1/2011 9:56 PM (GMT -6)   
What did the oncall neuro say? What did they do to treat you?

I think you need an explanation for those lesions. If you suspect MS, try to find an MS specialist. The local MS society will have a list of doctors in your area.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

~ChristieAnn67~
Regular Member


Date Joined Dec 2007
Total Posts : 151
   Posted 4/2/2011 11:03 AM (GMT -6)   
The oncall neuro advised I see a neuro,  but he himself doesn't have an office, I guess he just donsults and works at ER.   They didn't do anything to treat me...just advised me to see my pcp within 5 days,  and a referral to neurologists in salem.  But I have a friend at work that has MS and loves her neurologist, so I got his name.     I confirmed with my insuranc that I can see him..so that is good.  Now just waiting for my pcp to do the actual refer which I see on monday.     thanks for the info.   I am a bit concerned....

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 4/2/2011 1:53 PM (GMT -6)   
That all sounds good. Try to get a copy of the MRI on cd along with the written report. Hand carry those to the neurology appointment. He can pop that MRI into his computer and take a look. Good luck. I hope it turns out to be something treatable.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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