That sounds like you are dealing with a lot of issues, many that you mention are common MS symptoms although you must always bear in mind that all MSers are very very different. That is one of the things that's makes MS and auto immune so hard to diagnose.
I am a 17 year Mser and an auto immune patient and much of what you describe is similar in nature to my condition. MRI's were no use to me as it took a spinal tap to finally diagnose me after 7 years trying to figure out what was happening.
Sometimes a MS patient comes along who is not the typical Mser, that would be me! even knowing MS exist now has not changed the fact I continue to get all sorts of nasty auto immune diseases. At first the docs tried to attribute it all to MS but after awhile it appeared obvious it was auto immune and that MS was only part of a larger picture.
Like you I struggle to understand what being "auto immune" actually means and my docs do also. They really can't figure out who to send me to anymore! or what to do other than make me comfortable.
My advice to you is do a lot of research and learn to be your own "patient advocate". Don't allow the docs to give up looking because there is an answer out there somewhere. Best of luck!!! FishMike.
Thanks for the thoughtful response. It sounds like you've been through a lot too. A spinal tap sounds awful. What was it like, if I may ask?
I have been very concerned I might have MS, as neurological diseases run in my family, and I once heard my mother say that it might run in my family, but I'm too afraid to ask her because she does like to talk about
things like that. I'm also pretty sure I don't have epilepsy, my mother does, but I have never had a grand mal seizure and my symptoms are too strange, as I have joint pain, chest granulomas and bizarre rashes. I've heard of connective tissue diseases being diagnosed in MS patients. My positive vitamin D deficiency test struck me as one of my most interesting results out of the tests I've had so far. Rickets(vitamin d deficiency) seems to be very common in MS out of all the autoimmune diseases. I'm very interested in what you said about
your MS being part of a bigger autoimmune problem. It seems that autoimmune diseases are co-morbid with the other ones, as many people report having more than just one condition. I almost feel as though diseases like Lupus or MS are just part of a larger problem, just as MS is for you, that autoimmune diseases are just different manifestations of having a problem with your immune system, which is the true issue.