Posted 4/11/2011 2:20 PM (GMT -6)
***Cross posted on CFS Forum******
Hello!! I am new to this forum and was hoping to hear some feedback. Here is my story.
I am a 38 year old woman, married with two sons. In September of 2006 I was diagnosed with MS (MRI showed white matter lesions on my brain stem) and immediately put on Betaseron. I could not tolerate the Betaseron, then was put on Copaxone. I was taken off the Copaxone when my spinal tap came out clean and my second MRI came back with the lesions not being very visible as the first MRI. I still suffered from horrible migraines, fatigue, weakness on the left side of the body, vertigo, shooting pain going down my spine and neck pain. I voiced my complaints to the neuro who told me that I need to take vitamins and exercise. I then went to another neuro who also ran brain and cervical mri's, as well as a VEP test, all of which came out fine or unchanged. He then referred me to an infectious disease specialist who told me I had CFS.
I should mention that I had a really bad flu in December of 2001 where I had a fever of 104 for 5 days. It left me exhausted as well as with severe joint pain for about a year afterwards. Infectious disease doc told me that this flu cause to autoimmune system to completely go "out of whack", hence my on going issues.
I am PERFECTLY ok with the CFS diagnosis, but what concerns me is that I was told at one point I did have MS, then after I took the meds, I showed improvement. I just really dont want to be misdiagnosed.
So anyone have been in my shoes?????