I had my LP yesterday and it was pretty bad. It took two doctors because the first one tried for an hour. It ranked right up there with childbirth when I had my seventeen year old. I don't think I swore though, even though I'm not totally sure. He tried two places with no luck. The pains that were shooting down my legs. My right quadricep cramped up and I thought I'd die. Then when he tried the second spot I actually had vaginal pain, hip bones, and inner thigh. I might have those mixed up but you get the idea. He said maybe I should reschedule and try it again another day. I didn't reallt want to go through it again and thought this is how it would feel even on a different day. Then he suggested he get another doctor and let him try. While I was waiting I told the tech I didn't think I could do it awake and she told me they couldn't put me out for it. She said they could give me an anit-anxiety pill, which I wish I had taken to start with. By now my muscles were so tense I didn't think I could relax enough. Anyway, the second doctor was 100% better and got it with virtually no pain.
I stayed there for an hour with my husband and I was really nervous about standing up for fear I'd get "the headache." My back hurt and is now bruised around the first attempts area. The one that worked has no bruising at all. I'm currently reclining on my sofa recliner with a rolled throw to keep my back from touching the couch. It is very tender to touch so I avoid it as much as possible. I have a headache but I get "the headache" after standing for about five minutes and then have to lie flat.
They told me about the bloodpatch but I don't remember how long I should deal with the headache before calling them. I have my annual (gyn) exam tomorrow so if it's still bad I might have her call neuro or radiology.
Have you heard anything on your results?
I went to my new neurologist yesterday morning (the one I saw at the end of March, who sent me for the MRI, moved back to CA after my first appointment). He hadn't even looked at my chart prior to my appointment. I was there for an hour and a half going over my labs and other details. Once he finally got to my MRI, I asked him other than MS, what could the lesions be caused by. He said it's usually MS or Sjogren's. I looked up Sjogren's and it really doesn't sound like me.
One odd thing on my blood labwork was my bad cholesterol level. it was borderline high (133) and my good cholesterol was 41, which is low for women. What makes it so strange is that I'm a vegetarian and have a very healthy (I thought) diet.
I am anxious for my LP results, and equally anxious to get off the couch!
Oh yeah, I'm 42, 43 in July and i have three older kids (20, 19 and 17) and a ten year old. We now live in Maine, which last night the doctor said has a high MS rate, but I lived in CA for twenty years before moving here. Strange...
Anyway, let me know what's going on with your testing.
Samantha - Have you found out anything? I know what the wait can be like - still waiting....
have a good day!
I know there is more that I was going to write but can't quite remember.