Really need advice. :)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ktoy4
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/21/2011 6:28 PM (GMT -6)   
So i have been going through a bunch of testing and doctors for 4 months now. This all started when my now 8 month old son was 4 months old. It started with my femur bone ACHING. I almost thought it was a blood clot. Then my entire leg starts hurting. I got xrays of legs and there isnt anything wrong with legs. I had an EMG test done because they thought it was peripheral neuropathy. Normal test results. My memory starts slightly fading, mainly concentration issues. I end up in ER with SEVERE contipation. (O and meanwhile ive been getting unexplained dizzy spells for 10 months) Recently i started experiencing extreme leg weakness and tingling and numbness as well as chronic leg pain. One day my rt leg hurts, the next my lt leg. My toes tingle, my fingertips tingle, sometimes spots on face tingle. I also go through periods during the day with "fatigue" spells. One minute im fine and the next i feel like i havent slept in days. I have a significant family history of MS, so im getting extremely afraid. I am in school to become a police office so with ms that wouldnt happen. Even just some opinions would help from you. I have a spine MRI tomorrow and a brain MRI in 2 weeks.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 4/22/2011 9:32 AM (GMT -6)   
Try to hang in there.  The diagnostic process to either rule in or rule out MS is long, confusing and not always accurate.  There is not one test for MS.  It is a diagnosis of exclusion.  Early MS sometimes doesn't show up on an MRI and that can complicate matters.
 
By the way, I have a friend who was diagnosed while enrolled in a firefighter's academy to become a paramedic.  He completed this school and went on to become a paramedic.  Please don't assume your life is over with an MS diagnosis.  It can  be very scary, but this disease is different for everyone.  Many do manage quite well. There are many ADA laws in place to protect people with disabilities in the work place.
 
Your symptoms are disturbing to be sure.  In my opinion, you haven't listed one symptom that in my mind eliminated MS.  Often people come here and list their symptoms and they have one or several that just don't belong with MS.  (joint pain, sore throat, skin rashes, etc.......these indicate some sort of infection and not MS)  I am not a doctor, however and these are just my opinions.
 
I am hoping and praying that you don't have MS.  Make sure your MRIs are with and without contrast and are the specific technique used for looking for MS lesions.  I am glad to hear that you are getting both spine and brain.  By the way, if they do use a contrasting agent (usually gadolinium) make sure you have a history of good kidney function and drink lots of water for the next 48 to 72 hours following the MRI. 
 
Please keep me posted.  Ask as many questions as you would like.  I am concerned.

Ktoy4
New Member


Date Joined Apr 2011
Total Posts : 3
   Posted 4/23/2011 8:10 AM (GMT -6)   
Gretchen1 said...
Try to hang in there.  The diagnostic process to either rule in or rule out MS is long, confusing and not always accurate.  There is not one test for MS.  It is a diagnosis of exclusion.  Early MS sometimes doesn't show up on an MRI and that can complicate matters.
 
Well i had a spine MRI by my orthopaedic doctor yesterday. Im not sure why but he said to go. It was an MRI of my L spine, and he also ordered X-rays of spine. My leg pain has been getting worse lately. Its a dull, aching, annoying pain and its getting to be too much. I have an appt with the neurologist monday morning and another with ortho doc to review mri in afternoon. Im so frustrated mainly because i just want to rule ms out i guess? I was in the ER with the leg pain 3 days ago, it was bad. My legs were tingling and aching. The thing is, its usually never both legs at the same time. Its usually either the right or left leg, 80% of the time my right leg. Thank you for the advice it helps a lot :)

springsjean
Forum Moderator


Date Joined Mar 2009
Total Posts : 2165
   Posted 5/16/2011 7:57 AM (GMT -6)   
While I am not familiar with MS at all and do not dismiss its possibility or existence, I am familiar with lyme. Many of your symptoms are consistent with lyme. Perhaps if you get a chance read some of the posts on the lyme forum. They are so helpful to me and just may help you in some way.
Lyme, HME, HGE, bartonella. 4 years undiagnosed despite 10 drs.
Current meds: roxythyroxine, bactrim, doryx, amanatadine, neurontin, xanax, cymbalta Prior meds: amox, minocycline, tetracy, doxy. IV refused by ins. Supplements: potassium, boluke, alpha lipoic acid, AG immune, magnesium, milk thistle, garlic, grapefruit seed extract, resistant microbes, coq10, fish oil, baby aspirin
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 1:09 PM (GMT -6)
There are a total of 3,005,867 posts in 329,273 threads.
View Active Threads


Who's Online
This forum has 161808 registered members. Please welcome our newest member, bumed.
276 Guest(s), 8 Registered Member(s) are currently online.  Details
tobee, mibella, jberda1, Girlie, Szabo246, Mister Mike, Shayanv, iPoop