Recent MS diagnosis after taking Humira and Embrel

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sweeneycrk
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Date Joined Apr 2011
Total Posts : 1
   Posted 4/22/2011 7:07 PM (GMT -6)   
I have recently been diagnosed with MS after taking Embrel and then Humira for Psoriasis and Psoriatic Arthritis. I am a 56 year old female who has had Psoriasis all my life and PsA for the last 5 years. There is a possible link between the biologic drugs and MS and now I am reluctant to start the DMT my neurologist recommends before I do more research. The side effects of these drugs sound much worse than what I experienced with Humira and Embrel. Has anyone had this expererience? I am wondering if stopping the Humira will avoid any more lesions and symptoms?

uh oh
Regular Member


Date Joined May 2011
Total Posts : 21
   Posted 5/5/2011 9:53 AM (GMT -6)   
Hi, I'm new on here. Ihave a few symptoms I can't fiqure out.I was diagnosed with Fibro--12 yrs. ago. now I have developed balance problems and an intolerance to heat.so far the dr. is treating me for high bp.Could this be ms. An mri done 6 yrs ago shows a high signal on t2 and t2flair.

BadDay
Forum Moderator


Date Joined Jan 2011
Total Posts : 1067
   Posted 5/6/2011 3:42 AM (GMT -6)   

Hi , i'm currently in simular boat, in process of diagnosing if i have MS i was taking Humira for RA and had to stop due to too

 many side effects from first use i felt Terrible Headach Fatigue just plain Lousy but my joints did improve a Little

 but since stopping it i have found not only are my RA symptoms worse but have all the symptoms of MS i only took Humira for

 3 Months and i would personally  Never use it again the weird thing was i have had RA for Years and had ups and Downs  but

 generally got thru then after a Bad Flare up i gave in and took the Humira  and Boy i regret it . How long did you take it for?

 i wish you well


Rhumatoid Arthritis 20Yrs.(that is Diagnosed-but had symptoms since teenage) Asthma,Osteoperosis,Cervical Spondalosos,Degenerative Disc Disese,Diabetes,Heart svt Diabetes
Cimzia, Metheltrexate,Tramal 200mg(twice Day),Prednisone,Diabex.
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* We are Born Crying We Die Crying Try to Laugh inbetween, None of us are Getting out of here Alive *

Wonder-Y
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/30/2011 10:17 AM (GMT -6)   
New here.
Signed up last week. Didn't know what to say or where I was going with this. Now maybe I do.
I am recovering from Optical Neuritis. From the symptoms, thanks to the computer, I thought I new what it was. After many doctors of all kinds, I went to the Rheumatologist Friday.  She has no doubt it is MS with all of the symptoms and test results and she also has no doubt it was either caused or unmasked by Humira, I was her first case like this and there was no way to tell which one it was and she could do nothing else for me except pain relievers, Vitamin D and Calcium expansion since the steroids just leached my bones of everything I had. 6000mg in 5 days a few weeks ago. When considering putting someone on a TNF inhibitor,they go by whether or not you have a family history she said and I didn’t have one. Um, I have read so much info on this I know that although it is highly likely genetic it is not hereditary, so the family history is garbage. I go back to her in five months because she wants to keep up on my case. I guess I am now a test case for her. 
She is on the Enbrel/Humira board. The warnings on Enbrel are more specific. Actually naming demyelination,optical neuritis and MS as low probability side effects and more, stating that all TNF alpha inhibitors/blockers are included with these warnings. Humira was so basic in it’s warning I wouldn’t even realize they were talking about neurological effects if it didn’t state it in the lead in on the bottom of page 9. Numbness and tingling are carpal tunnel or pinched nerves also and vision changes. What’s that? Could be you need glasses. Paralysis would be something that would get your attention no matter what. If you could move enough to get to the doctor you would go immediately and they would know something wasn’t right. I had “vision changes” and was trying to get answers a full month before I finally got to the point of being legally blind in both eyes and went to a medical doctor on my own advice, because no one else put anything together and Humira was brought up every time I went to any kind of doctor. Optometrists, Ophthalmologists, medical etc.  Even the Neurologist took 3 weeks after I had seen him to get in contact with the Rheumatologist about it, even when it was one of the first things out of his mouth. I made the initial call that day. Their records were so inane that when they called me three weeks later after they told me to go off of it when I called, they called to tell me to go off of it. Not to remind me to make sure that I did. It was as though it was the first time it crossed their table. I also had told the GP that sent me to the Rheumatologist, and marked down on the sheet the Rheumatologist gave me the first time I went there about my severe weakness and numb spots as well as my draggy foot along with the bone pain. She heard ulcerative colitis and bone pain. She said it would not do much for the UC but it would help the Iritis. 
 I look at it like 9/11. It would have never happened if the CIA and the FBI were up to speed with each other’s info.
I just want them to , right after saying“ I’m going to put you on, but there are some risks” include the neurological risks along with the cancers. Maybe everything. Explain what they mean by “vision changes”, don’t run a carpal tunnel test when complaints are voiced about tingling and numbness without asking some questions and raising some other possibilities.
Low risk is not the same as no risk. There is relatively a low risk that you will be killed in a traffic accident going to the store three blocks from your home, but the first time you get into a car you are warned to look out for things that may lead to it. You may get blind sided and can’t avoid it, but when you start driving, they don’t just put a pamphlet in the glove box and figure that you have read it. And I don’t remember them giving me a literacy or an IQ test either.
The Rheumatologist is hoping that stopping the Humira will reverse or at least lessen some of the effects of what is now certainly MS, If that is so, I could have stopped the Humira early enough that I may not have had to use all of my 3 weeks vacation and incurred thousands of dollars so far after insurance, in medical expenses not including gas mileage.
 That’s where I was going with this, because I bet that there are no doctors anywhere that do anymore than what mine did. Otherwise Mayo would be out of business.

AmerArk
New Member


Date Joined Jan 2012
Total Posts : 1
   Posted 1/17/2012 4:09 PM (GMT -6)   
I have been taking enbrel and humira for my psoriasis, I started having some numbness on the left side of my face, Called my derm and she immediately told me to go to the er, anyways after having several tests done I have been diagnosed with MS. My neuro says that humira has caused this which I don't doubt! My psoriasis is in remission for 4 months now but unfortunately have to deal with ms symptoms such as dizziness and fatigue... For now.

Singingsupernurse
Regular Member


Date Joined May 2012
Total Posts : 118
   Posted 11/24/2012 11:07 PM (GMT -6)   
I have had MS since 1998,Crohns since 2010. Humira is supposed to be great for Crohns, but I can't take ANY of the biologics b/c of the MS(will make MS worse). Humira causing MS...Don't know I believe anything is possible, suppose that the biologics help one part of the immune response but then make the other parts worse. God bless you all and I hope things get better.
Those that do not learn from history are doomed to repeat it
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