MS without brain lesions?

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nurse14
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/31/2011 1:52 AM (GMT -6)   
Hi everyone, hoping someone can help shed some light on my struggles
 
Since January I have been having several ms-like symptoms (weakness, fatigue, numbness, vibrations, tremors, the newest are spasms/cramps, shooting, stabbing, and searing pains, bladder and bowel problems, and electric shock-like sensations to my neck). The problem is I also underwent radiation treatment for a brain AVM a year ago and all the docs I have seen are blaming all these symptoms on the shrinkage of the AVM and radiation effects (the MRI's have shown no signs of swelling or other radiation necrosis signs), and basically saying that every system in my body is having problems independent of each other. What doesn't make sense is that my symptoms are on both sides of my body when the AVM is on the right side only (but deep in the brain and close to the brainstem). My question is could it be that I have MS as well as this AVM? The initial differential when I lost my peripheral vision included MS but this was ruled out because I had no lesions. Can you have lesions on the spinal cord and not the brain or on the optic nerve, or even behind the AVM that couldn't be seen? I am on gabapentin which is helping with the vibrations/tremors but not making them completely disappear. With time a lot of the symptoms have gotten better only to have new one's appear. The vibrations/tremors/numbess/weakness are induced by exercise and by a raised body temperature. I wake up every morning with a shaky/vibrating feeling, probably because my body is kept warm all night under the covers. Has anyone else had experience with this?
 
Thanks

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3568
   Posted 5/31/2011 8:13 AM (GMT -6)   
Yes. Yes. Yes. You need an MRI of your spinal cord. Google L'hermittes sign when you get a chance.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

nurse14
New Member


Date Joined May 2011
Total Posts : 2
   Posted 5/31/2011 11:51 AM (GMT -6)   

Thanks Gretchen1

I saw a 2nd neurologist yesterday and he has agreed to do a full spine MRI. I have looked up L'Hermitte's sign several times before, the shock doesn't come from flexing my head forward, but from turning it to the opposite side, so not sure if this is  the same thing or not. How were you diagnosed? What signs did you have? Is anything helping you with symptom management?

Thanks


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3568
   Posted 5/31/2011 7:00 PM (GMT -6)   
L'hermittes is very specific to bending your head down, chin to chest. Sounds like you are experiencing something different.

I was diagnosed after experiencing several weeks of severe vertigo that eventually had me wall walking. I was hospitalized for four days. During that time I had an MRI of the brain, there was one lesion on my cerebellum. They didn't know what it was but it looked like it could be demylenation.

A few weeks later another lesion showed up on a follow-up MRI. This lead to a lumbar puncture looking for oligoclonal bands. They were there. I also had evoked potentials with abnormal results. My neurological exams were abnormal for various reflexes and responses. I also had L'hermittes sign. Didn't know what it was but since it didn't hurt, I didn't mention it until I was asked. I suppose the neuro. suspected MS.

Finally, there was a spinal MRI which showed another lesion.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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