Hi everyone, hoping someone can help shed some light on my struggles
Since January I have been having several ms-like symptoms (weakness, fatigue, numbness, vibrations, tremors, the newest are spasms/cramps, shooting, stabbing, and searing pains, bladder and bowel problems, and electric shock-like sensations to my neck). The problem is I also underwent radiation treatment for a brain AVM a year ago and all the docs I have seen are blaming all these symptoms on the shrinkage of the AVM and radiation effects (the MRI's have shown no signs of swelling or other radiation necrosis signs), and basically saying that every system in my body is having problems independent of each other. What doesn't make sense is that my symptoms are on both sides of my body when the AVM is on the right side only (but deep in the brain and close to the brainstem). My question is could it be that I have MS as well as this AVM? The initial differential when I lost my peripheral vision included MS but this was ruled out because I had no lesions. Can you have lesions on the spinal cord and not the brain or on the optic nerve, or even behind the AVM that couldn't be seen? I am on gabapentin which is helping with the vibrations/tremors but not making them completely disappear. With time a lot of the symptoms have gotten better only to have new one's appear. The vibrations/tremors/numbess/weakness are induced by exercise and by a raised body temperature. I wake up every morning with a shaky/vibrating feeling, probably because my body is kept warm all night under the covers. Has anyone else had experience with this?