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New Member

Date Joined Jun 2011
Total Posts : 6
   Posted 6/25/2011 9:46 PM (GMT -6)   
hello...I'm a 47 year old female diagnosed with MS in 2005...My question is related to chronic pain.
My original neurologist told me he didn't support in any way that MS causes pain and I suffered with it for nearly 2 years thinking surely he must know more than me.
I finally could take no more and went to see him and he looked at my husband and said "if your wife wasn't overweight her legs wouldn't hurt"
Needless to say that was my last visit with him.
Soon after I got laid off and lost my insurance and was unable to find a second neurologist.
I'm finally insured again and have an appointment with a new neurologist in July and I'd like to ask for help with this pain because it is making work and life in general very complicated.
Most of my pain is in my neck right at the base of my spine and in my legs.
It is a deep throbbing ache that seems to never feel any better.
I'm currently on 27 hundred milligrams daily of neurontin but all that does is calm the tingling and numbness in my hands and face.
Have any of you found this pain with your MS and what worked for you?
Thanks for any help!

Regular Member

Date Joined Apr 2006
Total Posts : 389
   Posted 6/27/2011 2:22 PM (GMT -6)   
Hi there - I am glad that u dumped youroriginal neurologist, as this guy is a jerk...for thinking that MS does not carry with it pain, and two, for the obnoxious comment he made to your husband about you!
Both cases, he was wrong.
Most of my MS symtpoms that cause pain are as with u - my neck and my shoulders. I get a burning sensation right in the back of my neck, like someone is holding a lit cigarette there, which comes and goes....I am told that this is nerve pain.  I also get lots of muscles spasticity - shrinking fo the muscles in the shoulder that makes it very sore and sometimes my range of motion is limited..
For me, and this is me, I take ativan, which helps relax the tension im my neck and shoulders, which has jelped me quite qwell, but it relaxes me overall - which I do need....  I know that there are drugs out there to relieve muscle tension and also nerve pain, but I do not at this moment know the name of these drugs....
Massage can be benefical as well, to help lessen the tension and pressure that these tight muscles do to the back of your neck....
Take care and have a good day

New Member

Date Joined Jul 2011
Total Posts : 1
   Posted 7/4/2011 10:21 AM (GMT -6)   
Hi, I take the muscle relaxant Flexeril (Cyclobenzaprine) by prescription for muscle pain in my neck, upper and lower back and it works really well for me. My pain is from musle tension/spasms. I used to need multiple warm packs on for an hour every morning to lessen the pain and stiffness. Initially my neurologist prescribed 5mg (half tablet) every night for two weeks to get me to a better place. I stopped needing the warm packs. Now I take either 5 or 10 mg as needed at bedtime, and feel virtually pain free in the morning. My side effects are sleepiness after I take it (helps with sleep though) and dry mouth next day. I take it 12 hours before I need my brain in the morning so there is no carry over sleepiness to the next day. Stretching in general, but especially with warm packs on the tight muscles, before going to bed or any time also help me a lot. Also, for a stiff or painful muscle for the day, I like the kind of heat pads that you can stick on to your skin, they are flat so you cant see over your clothes, and they stay warm 6-10 hrs. They are for one time use only. I buy it at RiteAid. One is called BodiHeat, and there are other brand names. They usually come a few in a packet. Hope this helps.
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