help is this MS

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New Member

Date Joined Jul 2011
Total Posts : 2
   Posted 7/7/2011 2:01 AM (GMT -6)   
First off I don't have a diagnosis of MS, unless you count the people I have met over the years who have it and are convinced I have it too... which doesn't swing with the medical community. (: I have been told I have "many interesting symptoms to monitor" all of which get called coincidence and given their own individual unrelated diagnosis if the doc even writes it down at all. I have balance issues, vision problems, weakness in my arms and hands, bladder and bowel issues, fatigue, numbness, the newest are little or no taste or smell. My eyes are very sensitive to bright light and whenever I am outside I need to wear sunglasses. Have often short of breath. Sometimes my foot drags, on the right side. Occasionally my right knee just stops holding me up and I fall. I use a cane now. Inability to remember names, short term memory loss, stuttering, and ankles swelling. I also began having on-again/off-again unexplained eye pain in one (right) eye. Was tested for carpal tunnel, results showed mild carpal tunnel. Plus have fibromylagia. It's not like I want to have MS. And maybe I am just suffering late effects of the auto accidents. Would like to at least have something I can tell people where they will not think I am making it up... most can't believe I would be messed up from a car accident. MS fits but i bet so does lots of things so we just need to figure it out what. i don't know what the heck is going on -- i just want to be well-- what is wrong with me.

Regular Member

Date Joined Jul 2011
Total Posts : 43
   Posted 7/7/2011 5:45 AM (GMT -6)   
Alot of those things, sound related to nerve damage. Your knee giving out on you, the numbness, lack of taste or smell. The bladder/bowel issues, & vision problems could be related, could be another condition. I have frequency and incontinence sometimes with my bladder from the nerve issues. It can cause you to have a loss of vision. Nerves controlling intestinal muscle contractions often malfunction, leading to diarrhea, constipation, or incontinence. The stuttering can be due to a nerve problem or MS. Most of this could be due to neuropathy or MS. The fatigue could be from MS or Fibromyalgia. It's hard to say which it is, you need some tests done. Has your doctor offered to do an MRI on your brain? You have more going on that just fibromyalgia. If it was me, I would call the office and ask for a referral to a neurologist. I don't think a doctor can turn you down if you want a referral. A neurologist would get down to the bottom of these issues you have. I guess a serious car accident could have caused you neuropathy. Even still, you need to see a specialist for the diagnosis and treatment.

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 7/7/2011 6:48 PM (GMT -6)   
Go see a neurologist and preferrably an MS specialist. Your local MS society chapter can give you list.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

New Member

Date Joined Feb 2010
Total Posts : 1
   Posted 7/7/2011 10:05 PM (GMT -6)   
Multiple sclerosis is the great pretender, it lies in the bushes, lurking, appearing and disappearing and lurking more. I was fortunate a diagnosis was made rather quickly but only after an useless appointment with a neurosurgeon. Diagnosis came soon after an MRI. That was more than 30 years ago and I'm tickled to report all is well, fantastic actually. My neurologist repeatedly calls me a very lucky man categorizing me as having benign ms. The first 20 years were extremely difficult. I suffered through just about anything and everything ms threw at me. I could no longer button my shirt, shave, walk safely, talk or write clearly. My entire life was being run off the road. However, no matter how ill i got, I recovered time and again. My saving grace were repeated treatments with the steroid methylprednisolone. But frankly I feel matters really didn't start turning around for me till a treatment with immune gamma globulin (IGG). I felt better weeks, months, years after the treatment. I believe in it and would ask for it if I thought it was necessary. I swim regularly and live it's extraordinary benefits. I'm sold on the endless benefits of exercise. Does anyone have a better suggestion? Good luck to you, may all your decisions be wise and based on the truth.

New Member

Date Joined Jul 2011
Total Posts : 2
   Posted 7/29/2011 6:47 PM (GMT -6)   
hiya, i am 17 and have lymphoedema which was diagnosed when 12, this is where my lymph on the right bottom side doesnt work, which leaves me with a swollen ankle, but lately i have been experiencing weak, unbearable pains in my legs and arms, sometimes not able to walk, i automatically assumed it was due to my bad circulation from lymphoedema, but MS does run in my family, so i panic, today i have been experiencing heavy arms, weak, slightly a burning sensation. Can a MS sufferer please tell me some more symptoms?

New Member

Date Joined Jul 2011
Total Posts : 2
   Posted 7/29/2011 7:47 PM (GMT -6)   
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