"Possible Inactive MS"??? Help?

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Nay91400
Regular Member


Date Joined Jul 2011
Total Posts : 27
   Posted 7/19/2011 12:29 PM (GMT -6)   
Hi, my name is Renee and I am new to this site/forum. I am 25 years old and was in a minor car accident in April; I was rear ended, resulting in whiplash (neck pain.)

After a couple of months of therapy, I was sent for an MRI of my cervical spine when the pain in my neck didn't go away; in addition to a bulging disc, I was told that there was an area of demylination (sorry if I butchered the spelling) and that I needed to get another MRI with contrast. Upon doing this, I was told that there was a "possible inactive lesion" and that it looked like "possible inactive MS." My mother has MS; she has had it since she was 18 years old but was misdiagno
sed with a vitamin b12 deficiency and has only actually known she has the disease for the last 10 years or so. She has good and bad days but has a lot of trouble with her gait and the humidity and heat make things unbearable for her.

I met with a neurologist yesterday (my mother accompanied me), who explained that because my mother has MS I am 10X more likely than the average person to develop it. She said the lesion did look like MS, but told me that she thought I was worrying too much and that she doesn't think I have it. After all, her explanation was that I am very active and not symptomatic (last year when I first started running regularly I had a very uncomfortable numbness/tingling sensation in both feet that lasted 2-3 days. My primary doctor sent me for an MRI of my lower spine just to rule out MS because of my family history and that came back normal.) I am a runner and my mother has a very hard time walking, especially with heat/humidity.

She kept comparing me to my mother, which confused me...whether or not it turns out that I have MS, doesn't it effect everyone differently? Aren't there all different types and stages? She is sending me for 2 more MRIs (brain and thorasic spine, again sorry for spelling), blood work, an optic test of some sort, and...the lumbar puncture (pretty nervous about that one.)

I have always been very active within the MS community, raising money for the MS Walk in honor of my mother and all that she goes through with this disease and will be doing the Philadelphia Half Marathon (I Run to Stop MS) this November. I can't help but feel like this is too crazy to be true. I am wondering whether this is all a psychological game I am playing on myself, convincing myself that I have it...but I didn't make up a lesion so I don't know what to think.

Post Edited (Nay91400) : 8/11/2011 2:57:44 PM (GMT-6)


Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 7/20/2011 9:05 PM (GMT -6)   
Oh my brain!! Well I did manage to get through your post...hehe. Please break long posts into smaller paragraphs for those of us with vision issues. It makes it so much harder easier to track and read.

I do think you have something to worry about. You are absolutely correct, MS is different for everyone. Get all your tests and get your own copies of the results. If you think you need one, seek a second opinion with an MS specialist. Early treatment (if you do have MS) may really help.

Stay as active and fit as you possibly can. A healthy lifestyle can help as much as disease modifying medications. Please feel free to ask any questions you may have. Best of luck to you and thanks for participating in MS fundraising. I really appreciate it!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Nay91400
Regular Member


Date Joined Jul 2011
Total Posts : 27
   Posted 7/21/2011 5:45 AM (GMT -6)   
Thank you so much for the reply, Gretchen. I'm so sorry about that, I could have sworn that I broke it up but see here that I didn't! Guess in my haste I forgot to! :( Hope your eyes will forgive me. I will definitely do all that you said; any idea how bad the lumbar puncture will be?

Thanks again.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 7/22/2011 10:45 PM (GMT -6)   
A lumbar puncture is not awful. It's not a lot of fun, but it is usually over quick. If the doctor has difficulty finding a space, then ask for flouroscopy. That allow them to find a space which make the whole procedure very easy. I didn't have flouroscopy and it was a bit uncomfortable for a few minutes.

Some people get a bad headache afterward. If you get that, lay flat, drink lots of fluids and caffeine helps. Report any headaches to your doctor.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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