My Doc says no pain with MS????? Is that true?

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hollyhock1999
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Date Joined Aug 2011
Total Posts : 10
   Posted 8/10/2011 11:39 AM (GMT -6)   
I was just diagnosed in January 2011. I told my Neurologist that I was having a lot of random, short lived pains...some of them are REALLY painful. She told me that there is no pain with MS. I can't imagine what else it could be, I'm 46 have been perfectly healthy my whole life and BANG! diagnosed with this lovely disease and will get shooting, sharp pains all over my body (mostly at night). I get woken up pretty much every night for the last three weeks - mostly in my extremities, head and neck. Does nobody else with MS have pain?

Gretchen1
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Date Joined Jan 2007
Total Posts : 3565
   Posted 8/10/2011 1:26 PM (GMT -6)   
Get a new doctor. Yours is clearly inexperienced with MS. Find an MS specialist.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

hollyhock1999
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Date Joined Aug 2011
Total Posts : 10
   Posted 8/10/2011 2:26 PM (GMT -6)   
I guess I'll have to - every time I try to tell her about something going on, she says "that is not usual to MS", but I read what people are writing on this forum and my symptom's sound very much "usual to MS"!! Frustrating

Gretchen1
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Date Joined Jan 2007
Total Posts : 3565
   Posted 8/11/2011 12:00 PM (GMT -6)   
There is nothing worse than a serious chronic health issue and a doctor that doesn't get it!! Call your local MS society and get a list of doctors in your area. Get a doctor that specializes in MS.

By the way, I have pain with my MS. My doctor is the director of a well known MS clinic and he acknowledges and treats my pain. You deserve better!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

DFC
Regular Member


Date Joined Apr 2006
Total Posts : 136
   Posted 8/15/2011 4:25 PM (GMT -6)   
 
  Hollyhock,
 
My guess is that your Dr. lives in some faroff parallel universe. Like Gretchen said...time for a new doctor. I have terrible pain as do many of my M.S. friends. Good luck. We are all thinking about you.
 
Dale

Kimber
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Date Joined Jun 2005
Total Posts : 1852
   Posted 8/17/2011 9:14 PM (GMT -6)   
Hi Holly,
 
    I believe the numbers are something like 65% of people with MS have some kind of short or long term pain.   Many years ago they did used to think MS did not involve pain, however most doctors that are up to date now know this is not the case.   I agree with the others on the doctor switch.  Best of luck to you!
 
 

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 389
   Posted 9/19/2011 12:21 PM (GMT -6)   
I agree, get rid of the doctor,,,,this just makes me boil....I mean how can you have muscles that shrink in the back of ur legs or in your shoulders and not hurt....gees

Gary

diamondreo90
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Date Joined Sep 2011
Total Posts : 11
   Posted 9/23/2011 9:09 PM (GMT -6)   
Get another opinion and good luck.

anna26
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Date Joined Oct 2011
Total Posts : 7
   Posted 10/5/2011 8:30 PM (GMT -6)   
I agree with everyone and I like Dale's response especially!

nikki1980
Regular Member


Date Joined Jan 2012
Total Posts : 38
   Posted 2/1/2012 10:08 AM (GMT -6)   
I see that this thread was started a year ago, but I am in the same situation as the original poster. I was just diagnosed jan. 4, 2012 when I got optic neuritis. I had a terrible headache for 1 week but the neuro said ms lesions don't cause pain and wouldn't give me anything that would help. Once I got out of the hospital and went to her office, I told her about the intense left-shoulder pain I have every night when I lay down, pain in ribs, constant back pain, etc and she said that it wasn't related to MS. She went on to say she has back pain sometimes, too. I think maybe my age (31 yrs. old) works against me as far as pain relief goes. Idk. I wonder if I get a new doctor if it would mess up my copaxone treatment I'm about to start?

Beau2006
Regular Member


Date Joined Apr 2006
Total Posts : 389
   Posted 2/1/2012 11:58 AM (GMT -6)   
Hi there, sure is frustrating isn't it....Im assuming that u are talking about your family doctor and not your neurologist....if this is coming from a neurologist then u are in double trouble.  I am in Canada - and I learned that most doctors take 8 hours of training on neuro disorders, and with that not enough training to recognize or know what the symptoms are for MS...most doctors do not know that there are alternative treatment plans out there other than taking steroids....so its pretty hard to talk to one of these people whos knowledge of MS is about a tenth of what yours is..
 
It should have no implication with your copaxone...Was the copaxone prescribed to u by a neurologist?
 
And I hear ya with the shoulder pain, it just wears on you sometimes.  A couple of years ago it was at the back and side of my neck, and in fact the muscles would pull to the point where it would knock my neck out of joint...It went away and then a year later it is now in my shoulder...but I have to think it will go away one of these days too..
 
Have a great day....
Gary

nikki1980
Regular Member


Date Joined Jan 2012
Total Posts : 38
   Posted 2/1/2012 3:33 PM (GMT -6)   
It was the neurologist that said all this, I don't even have a family doctor. I know,I should get one. I saw an eye doctor when I went blind in my right eye, he sent me to this neurologist, then she got me admitted to the hospital for iv steroids. She is fairly young, and one of the nurses at the hospital said she was new. The neurologist was who prescribed the copaxone(which I'm still waiting on).

So you suffer with the shoulder pain too? It is wearing on me. It makes me in such a bad mood and when it does let up something else always starts bugging me. I hope it gets better soon, for both of us.

Nikki

louisa2
New Member


Date Joined Jan 2012
Total Posts : 18
   Posted 2/3/2012 7:57 PM (GMT -6)   
Hi Nikki and Gary, would you mind explaining the shoulder pain to me (the best you can of course) as I am suffering with this terribly in both my shoulders, this started in my neck like shooting nerve pain. Now it is in my shoulders but more like stiff joints and pulling muscles and alot of mid arm pain too. I have suspected MS and am in the process of seeing another GP before I head off to the Neurologist. I have posted a topic on the site and would appreciate any help. Good luck Holly and to all of you. Thanks,

Lou.

nikki1980
Regular Member


Date Joined Jan 2012
Total Posts : 38
   Posted 2/4/2012 10:37 PM (GMT -6)   
Hi Lou. The shoulder pain for me is hard to explain. I do know that for me, it is always 1 shoulder, and not both simultaneously. Right now, its my left shoulder and it sorta feels like an electric shock. about three years ago it was my right shoulder. I wish I could be of more help but I am new to this stuff.

Nikki
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