I'm under attack

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hollyhock1999
New Member


Date Joined Aug 2011
Total Posts : 10
   Posted 8/13/2011 1:28 PM (GMT -6)   
I need to know if anyone else goes through the same attacks I've been having:

It starts in my right hip (or as high as my rib cage) it is a burning heat that travels down my right leg, the further down it goes, the hotter it gets...it is like someone is holding a blow torch down my right side. Meanwhile my left toes and fingers feel like they are fused together and curl under. The muscles in my left arm feel terribly weak, like they are dying...awful sensation. The whole attack lasts about three minutes and it scares the living hell out of me. Three out of the four attacks in the last month have happened as I am trying to fall asleep at night. I'm scared it is going to happen while I'm driving - I'm pretty much reduced to squirming around and trying not scream for three minutes - not real safe while driving down the highway!!

Diagnosed with MS January 2011 and trying not to panic about every new sensation happening to me

hollyhock1999
New Member


Date Joined Aug 2011
Total Posts : 10
   Posted 8/17/2011 6:20 PM (GMT -6)   
Really, no one else gets anything like this? Great, I was hoping for ammunition for my doctor who never believes anything I tell her....

Nay91400
Regular Member


Date Joined Jul 2011
Total Posts : 27
   Posted 9/8/2011 1:45 PM (GMT -6)   
I'm sorry Holly, I guess what they say is true and MS really does effect everyone differently. If your doctor blows you off like that...you may want to find a new one. =(

Sparnix
Regular Member


Date Joined Sep 2011
Total Posts : 28
   Posted 9/9/2011 8:17 AM (GMT -6)   
I'm with Nay...

Having a great Nuero is essential. Usually when I go in and talk about my symptoms, it's not that he doesn't believe me, it's just that this disease is so unpredictable and no person goes through the exact same thing. So when I look for him for validation he usually gives me a vague answer but tells me how well I'm doing in all other areas. I kind of think of it as him not wanting to blow smoke up my you know what.

I noticed that you were very recently diagnosed. I have been diagnosed for 2 years and it probably took until a year and a half to stop worrying about every tingling, painful thing in my body. Your body is an amazing masterpiece. Your brain is a genius. Trust that. Keep telling yourself "this is only temporary" when you are under attack.

I can also appreciate your fear of driving. I went blind in both eyes at different times. My sight is forever ruined. I'm constantly worried that I'm not going to see a biker, or construction, or it's going to start down pouring.....I totally get it. However, life must go on, I must get to work, etc. Just keep fighting that fear....because in the end....it's a lie.

Hope this helps a little!
~Sparnix

hollyhock1999
New Member


Date Joined Aug 2011
Total Posts : 10
   Posted 9/22/2011 6:56 PM (GMT -6)   
I know you are right, I have to stay calm...but it is a really painful 3 minutes. Only had it twice in the last month so hopefully it is going to stay away now...hate it.

wilma
New Member


Date Joined Apr 2011
Total Posts : 15
   Posted 10/4/2011 9:03 AM (GMT -6)   
I am consistently under attack. I was told by my Neurologist that he never seen a patient like me. He says that I have an unusual form of MS. It is hard, but never give up. It did not take long for me to be diagnosed..I have also been seen by a MS Specialist at Duke Medicine.
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