thermal deregulation suggestions for clothing - vest - hat anything else

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JohnV
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Date Joined Aug 2011
Total Posts : 1
   Posted 8/15/2011 10:53 PM (GMT -6)   
Hello, My name is John. Full disclosure I do not have MS. I do however have an undiagnosed condition that seems to mirror one of the things that MS folk have and that is a form of thermal deregulation.

I'm 46 and I self-diagnosed then twice verified it with expert Physicians that I have had a Circadian Rhythm Disorder since my sleep patterns solidified in my youth.

As a result my internal body clocks are mis-aligned. My ability to maintain homeostatis is greatly compromised.

While I don't seem to have classic Raynaud's syndrome, I have very similiar discoloration from time to time of the knees (purple) feet (purple) hands (slightly so - not as bad).

To make a long story short I suffer from cognitive and behavioural decline very rapidly when it is too hot or too cold. I bought a Glacier Tek ice vest today online and will be trying that out. It also seems like my brain is not getting enough blood to cool it off. I am looking for ways to cool my brain.

Anyone who has used any products for keeping cool (as it is still summer) I am very interested in hearing from you. Thanks very much in advance.

Gretchen1
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Date Joined Jan 2007
Total Posts : 3571
   Posted 8/16/2011 1:38 PM (GMT -6)   
I have found that cooling my neck helps a lot. I do have a vest but I find it heavy and inconvenient. I like the neck wraps that you dip in cold water and tie around your neck. They contain particles that hold the water. They can be a bit messy or drippy but if I'm out in the heat, I'm probably sweating anyway.

In heat where I am getting into trouble, I'll hold ice directly onto my neck.

I have seen a product advertised for migraines that is like a cap. You store it in the freezer then you wear it for a few minutes (perhaps 20-30?). Maybe that might help your situation.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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