Botox and bladder with MS

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Amy B
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/25/2011 12:16 AM (GMT -6)   
Hello Everyone,
Just a quick post because I don't know if I am supposed to say anything yet. I have had MS for twenty years and started having bladder problems about seven years ago. I have had major bladder issues with retention, urgency and inability to hold for years to the point that I was wearing pads full time, always panicked a bathroom wasn't nearby, etc., etc. THE GOOD NEWS IS -- OR I SHOULD SAY THE BEST NEWS is that I have been in a botox study group that is being conducted worldwide for Bladder problems and it has changed my life entirely. All my symptoms are gone- each injection (done at the urologist) lasts me over a year (varies with individuals) and has been so successful that it is rumored that it is going to be sped through the whole FDA process so that it will be available in the next year or two. So, hang in there- hope is on the way!!!

The only side effect for some is that in the beginning it may actually difficult to urinate...I catheterized for a few months but at least I was able to go out for extended periods of time and there was no more worrying- YIPPEE and good luck to you all!!!

Amy B
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/25/2011 12:16 AM (GMT -6)   
Hi, Amy again- I am 44 years old, BTW.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/25/2011 7:59 AM (GMT -6)   
Amy!

That is such great news!! I'm so glad you are experiencing successful treatment. That is wonderful. Ive read much about the success of botox for bladder issues but you are the first individual who I've heard from who has direct experience. Thank you so much for posting!!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Amy B
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/26/2011 12:12 PM (GMT -6)   
Hi there,
Thank you and I have to say I LOVE YOUR SIGNATURE QUOTE!!! I can tell you are a great soul!!!
Have a super weekend!

Amy

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/26/2011 1:15 PM (GMT -6)   
Thanks Amy. I have "no limits" everywhere. I have some custom converse hi-tops with "no limits" embroidered on them. I also have a silver dog tag type pendant with it as well. It's a good mantra for fighting the MonSter. Feel free to steal it.

My sister's name is Amy and she is about your age! Cool.

Have a great weekend yourself!

Amy B
New Member


Date Joined Aug 2011
Total Posts : 4
   Posted 8/26/2011 6:15 PM (GMT -6)   
OMG- I LOVE that MonSter!!!! I formed a Walk Team to raise money some years ago and it was called TeaM Spirit but I really like MonSter!!!!!

Have a great weekend and keep smiling!

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/27/2011 2:30 PM (GMT -6)   
Hahaha! I stole that from someone else.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/27/2011 2:30 PM (GMT -6)   
Hahaha! I stole that from someone else.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/27/2011 2:30 PM (GMT -6)   
Hahaha! I stole that from someone else.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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