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D-Man
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Date Joined Jan 2011
Total Posts : 9
   Posted 9/4/2011 10:01 PM (GMT -6)   
Wondered of those here who have Multiple Sclerosis, how did you get diagnosed?  How long did it take?  What were your symptoms that led to a diagnosis?  I have many symptoms of MS, but I am not sure I have it, as I have AS and they share some similiar symptoms.  Any suggestions I should take next?   
 
Thanks

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 9/5/2011 8:09 PM (GMT -6)   
The most common symptoms can be: numbness, tingling, bowel and or bladder issues, vision problems, balance problems, concentration or executive function problems, weakness or paralysis.

Typical tests are: neurological exam, MRI of brain, evoked potentials (hearing, vision, extremities) lumbar puncture and blood work. There is no defining test. It's a diagnosis of exclusion. The doctor will ask about episodes (exacerbations) separated by time.

I was diagnosed in about 3 months but that's very fast. Most take many months and some have it for years.

www.mult-sclerosis.org/diagnosingms.HTML
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

D-Man
New Member


Date Joined Jan 2011
Total Posts : 9
   Posted 9/6/2011 6:31 AM (GMT -6)   
Thank you Gretchen,

I have had many of these and more symptoms for several years now. I thought it was directly related to my AS but found out that many do not have these sypmtoms. I guess I should talk with my doctor first.

Thanks again

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 9/6/2011 4:48 PM (GMT -6)   
Your AS could still be the cause of your symptoms. MS has extremely vague, varied and shares symptoms. Yes, you need to see a doctor. See a neurologist and preferably an MS specialist. Call your local MS Society chapter and ask for a list of local doctors.

nemar
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 9/7/2011 10:05 AM (GMT -6)   
I have not used this site before so I don't know if I'm doing this right.I may have MS or something similar. I will be having a MRI scan of my neck next week. This waiting around is driving me nuts.

nemar
New Member


Date Joined Jun 2010
Total Posts : 2
   Posted 9/7/2011 10:06 AM (GMT -6)   
What is AS?

D-Man
New Member


Date Joined Jan 2011
Total Posts : 9
   Posted 9/7/2011 11:40 AM (GMT -6)   
nemar,

AS is short for Ankylosing Spondylistis. Its an autoimmune disease similiar to RA, which causes pain and swelling of joints. Typically inflamation in AS means that the body is trying to fuse the joints of the body. I am no Dr by any means so you can find alot more information on this desease online.

diamondreo90
New Member


Date Joined Sep 2011
Total Posts : 11
   Posted Yesterday 10:45 PM (GMT -6)   
     Years ago, I had numbness in what's called the "basket". It consists of the area from the navel to the lumbar area of the back.
 Saw a neurologist but a pinched nerve was thought to be the cause.
 
  Years later, I'm at work and moved a heavy pallet the wrong way. I felt a numbness in my legs and arms.
 Well, I went to my Dr. and he directed me to have an MRI.  The MRI revealed the presence of five lesions.
 One is at the top of my spinal chord and four are in my brain.
 
  When he told me,I was angry. Not upset,scared or shocked,just pissed. My wife took it harder than I did.
 
  My neurologist was very straight forward with me and pulled no punches. I had blood work and a spinal tap
 to verify the findings. Yep !! I got me that MS !!LOL...
 
  Well,she started me on Rebif after I had researched the options I had. After about a year,my follow-up MRI
 revealed two more lesions had developed.
 
   I was taken off Rebif and started on Copaxone. It's been a couple weeks and still too soon to make an opinion
  on it's effectiveness. I'll get back next week with an update !!
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