Should I be screened for MS?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

New Member

Date Joined Sep 2011
Total Posts : 1
   Posted 9/23/2011 9:49 PM (GMT -6)   
I had a pretty discouraging visit with my new (and now former)internist yesterday. I basically reported most of the symptoms that I'm about to share with you, and was pretty much humored throughout the visit and was written a prescription for an antidepressant and it was suggested that I look up ADHD and asperger's online.
I have a bit of a list (I try to be as specific as possible), so thanks for bearing with me and I appreciate the advice. Some symptoms I have had for as long as I can remember, the others have developed and worsened over the past 2-3 years. These don't all happen at once of course, but it happens often enough to raise concern. Here goes:
-Headaches including migraines
-Vision loss, blurring mostly in one eye(like there's something in my eye) pain with light sensitivity
-Muscles aches with occasional pins and needles, vibrations in thigh, mild burning, spasms in neck and lower back, stiff limbs, joint (mostly hip) pain, tight almost swelling feeling in calves
-Pressure and squeezing feeling in chest
-Difficulty concentrating and completing thoughts, mixing & misprouncing words, slurring, bad short term memory
-Mild depression, feeling like I need to withdrawal myself
-Less coordinated, lose balance, tripping and dropping things
-Fatigue and overall lack of energy

I think I pretty much covers it! Haha thanks for reading.

New Member

Date Joined Oct 2011
Total Posts : 1
   Posted 10/4/2011 6:19 PM (GMT -6)   
Hey Audiophile!
I'm dealing with almost the same exact symptoms and my doctor blew me off as well, telling me he didn't know what specialist to send me to! I mean really?! Who are we paying here? It's scary.

I've been going thru a LOT of BS trying to get a diagnosis, my best advice would be go straight to the neuro. If you need a referal for insurance reasons, find a sensible internist who will refer you to a neurologist. Even if it's not MS, you don't want to take these symptoms lightly.
For your neuro appt, I'd really stress each and every symptom, when I went she did a full neuro exam and interview and only ended up writing me an rx for migrane meds and ordered more bloodwork. She was genuinely concerned, but my symptoms are so fickle she couldn't do much aside from sending me to another specialist and trying to relieve one of my symptoms.

Hope you find some answers!

Forum Moderator

Date Joined Jan 2007
Total Posts : 3553
   Posted 10/5/2011 7:32 AM (GMT -6)   
I can't speak for anyone but myself; my MS symptoms do not come and go. I have them all the time 24/7. The irreversible brain damage makes my symptoms permanent. I do have some variation. For example: the numbness in my feet and lower legs can escalate to a horrendous burning. The constant vertigo I have can cause me to "wall walk.".

I also have bladder issues, balance problems, numbness and coordination problems in my hands (especially the left). I have mild nystagmus. Heat intolerance.

The fact that your symptoms come and go seems a good sign that you probably don't have MS. Best of luck.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

New Member

Date Joined Oct 2011
Total Posts : 6
   Posted 10/6/2011 12:50 PM (GMT -6)   
Hi Audiophile,
Just wanted to say hang in there. My symtoms come and go too. I started out with the whole left side of my body numb when I woke up in the morning last January. All the feeling has come back except for my left hand, sometimes its only my thumb and pointer finger that are numb. Other symtoms I have are memory loss, loss of balance tripping, fatigue all the time, MS huge (tightness in chest), lower back pain, the feeling that I have to urinate all the time, speech slurring, hard time finding the right words for things, sometimes my voice sounds really weird. I haven't had any vison problems but I understand that that is a very common symptom. I have good days and bad days, never sure what kind of day it's going to be until its over.....hahaha!!!
When I had my last MRI done I had lessions on my brain and on my spin. Take care and good luck : )

New Member

Date Joined Oct 2011
Total Posts : 1
   Posted 10/23/2011 10:57 AM (GMT -6)   
This is for Audiophile. Hi that ADHD thing must be a very common thing that doctors tell you when they don't know what else to tell you. I had an inconclusive MRI exam for symptoms siimilar to MS about 15 years ago. I was given a test for Fragile X at the same time which was also a negative. When the neurological diagnoisis was not made they said I must have ADHD and prescribed Zoloft. Sound at all familiar? What a brush off. Now 15 years later I have a whole new set of symptoms along with the old ones that truely lead me to believe my symptoms are MS related. From what I have read a lot of people go through this very same situatiion with years of being brushed off only to find yes they do have MS. Oh well gotta for to be continued.

New Member

Date Joined Nov 2011
Total Posts : 1
   Posted 11/19/2011 9:59 PM (GMT -6)   
MS was diagnosed 26 years ago. Took ten years to get a diagnosis. Part of the way it is diagnosed is building a history of different symptoms. Two times, ten years apart, had optic neuritis. Always had high ANA counts. Fatigue, numbness in legs, dizziness, blind twice in one eye (optic neuritis), nystigmas, heat intolerance, felt like lightening bolts were going up the back of my head, etc. MRI's showed some lessions, spinal taps-nothing. Looked for lupus, MD, brain tumor,etc. Finally went to Mayo Clinic=they ruled out Lupus first day I was there and finally diagnosed MS-relapsing/remitting. Heat, stress and pushing too hard (fatigue) make my symptoms increase. For each degree core temperature goes up-symptoms increase. I took Copaxone-2nd injection I had a severe allergic reaction-first shot primed me, second=reaction.  Symptoms have gone down significantly since divorce--less stress smilewinkgrin  

Post Edited (dkcmht) : 11/19/2011 9:13:08 PM (GMT-7)

Forum Moderator

Date Joined Nov 2009
Total Posts : 3266
   Posted 11/20/2011 3:02 PM (GMT -6)   
Hi Audiophile,

You should be screened for a lot of things -- certainly not blown off like that.

Unfortunately you need to be your own health advocate when it comes to less clear symptom clusters like this.

In your research you should not only be looking into MS, but also Lyme Disease among other things.

Don't stop until you find out what is causing this!
Co-Moderator Lyme Disease Forum
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, March 18, 2018 5:33 PM (GMT -6)
There are a total of 2,941,136 posts in 322,720 threads.
View Active Threads

Who's Online
This forum has 161129 registered members. Please welcome our newest member, shouzheng06.
346 Guest(s), 6 Registered Member(s) are currently online.  Details
halo52208, countess18, astroman, Fyrcat, TDHENSLEY, tajwill