When I had a really bad attack in June, I went to ER, because not only was my muscles extremely weak, but I had a racing heartbeat as well. The ER doc said my potassium was normal, however I questioned that as low potassium has been a problem for me for many years. Sometimes low and sometimes normal. Anyway, he kept telling me I needed to consider seeing a neurologist because lupus & MS is so often misdiagnosed or could possible have both. Well, well, 3 days later back in ER because hearbeat was beating to fast again and I could do nothing to slow it down. This time, my potassium was low. I was admitted and went through all the cardio workups & put on potassium. The cardiologist says there has to be a reason for my potassium to be low and she can't find it either. I told her how hot I am all the time and the way I sweat, I can see how my potassium would be low at times. She even got to see this in her office as that day I was burning up all day and couldn't cool off. She decided yes, it probably was the body overheating.
I also found that low calcium would cause a lot of my symptoms, but not overheating or the dizziness. I should have been taking calcium anyway, but have been taking a multi vitamin, which of course being post menopausal, I should be taking a lot more. Just hated to take more pills. After reading about the calcium defeciency symptoms, I did get a bottle which includes "D" and I make sure I take it twice a day for a total of 1200 mgs and my multi which has 300, so getting 1500 mgs a day. Hasn't made a difference yet, but still hoping. Been on it a week now, so maybe to soon. I know my vitamin D gets low because I can't be in the sun, but I have been taking a D supplement for about a year when my rheumy tested it and it was very low.
Got a call today from the neuro's office and they had a cancellation. I go Thursday, the 20th instead of waiting til mid November. Glad about that. I really need some answers, however I know she can't give them to me right away, going to take a little time.
I am still having the muscle cramps, spasms and weird pains, debilitating fatigue that will not let up and of course the muscle weakness is still there. I have problems going to my mailbox which is about 30 ft from frt door. I also know I have really weak knees which have gotten considerably worse which would make my legs weaker, but not my arms. I have tried so hard to rationalize this stuff and I'm just not getting anywhere. I have not given up hope yet, though my luck has never been good, I keep thinking it has to be something different going on with my lupus or it's something simple I am missing.
Thanks for your reply. Any suggestions are greatly appreciated. I can't imagine having lupus and MS too. that's just something I don't think I could handle and like I said, I keep hoping.