lumbar puncture question

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gottahavefaith
New Member


Date Joined Oct 2011
Total Posts : 1
   Posted 10/4/2011 10:55 AM (GMT -6)   
A newbie here...undergoing MS diagnosis. I had a lumbar puncture done last week and was told that I could expect a headache and possibly some tenderness in my lower back where they did the procedure. Well....all the symptoms I have been having for the past few years suddenly reared their ugly head all at once and 10x worse!Leg weakness, neuropathic pain in legs much worse,tightness around my waist with tingling through my left side,facial numbness,ringing in my ears, severe fatigue and fasiculations in both upper arms.Had a headache but it eased in a few days and I have dealt with worse. Even had a new symptom of numbness from the top of my pelvic bone all the way under and up to my tailbone.(felt like I was peeing through a straw!) I called the neurologists office the next day to ask what was going on. I was told that it can "sometimes happen" especially if I already have nerve damage and that I needed to rest and if it didn't ease in a few days to go to the ER. The symptoms are gradually subsiding but still have leg weakness more than usual.(pseudoexacerbations were mentioned)?? I haven't yet been formerly diagnosed but my MRI shows lesions and I am symptomatic. Was told I "probably" had "low grade disease" and the lumbar puncture was to just help with the diagnosis. Would this be a "normal" reaction if someone had MS?? confused

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3571
   Posted 10/4/2011 3:58 PM (GMT -6)   
No. That is not normal. I was in an active flare (exacerbation) when I had my lumbar puncture. I had no reaction besides a bit of discomfort at the needle sight. I hope you're feeling better real soon.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

anna26
New Member


Date Joined Oct 2011
Total Posts : 7
   Posted 10/5/2011 9:23 PM (GMT -6)   
Speaking as a nurse, no, that is not normal. 
 
If you still have any of these symptoms go to an ER with a neurosurgeon on call for consult.  You would be surprised how many hospitals do not have a specialist like this on call.
 
Lumbar punctures are risky:  trauma, bleed, infection. 
 
The resultsof LPs  are often non-specific in MS.  Results are negative evn with MS in a significant percentage of cases.  And a positive LP only suggests MS.  So, what is gained from the results over what is already known (other than an income for the performing doc)?
 
Obtain skepticism and use it everywhere if you may have MS.   
 
Be well
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