Can anyone help with my MRI result - Can see Consultant until Friday

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

RobbieEl
New Member


Date Joined Oct 2011
Total Posts : 5
   Posted 10/4/2011 1:19 PM (GMT -6)   
Hello Everyone,

My name is Fiona and I'm 44 years. I went for an MRI head scan last Tuesday and my Consultant's Secretary telephoned me Monday morning to say there were 'slight abnormalities'. His will discuss them with me on Friday and I have scrolled the internet but I am just confusing myself <easily done!!!!>I am in a state of total confusion - can't eat sleep etc. Knowledge is power!!!!

Can any of you folks out there offer any kind of hints, advice etc. I have two disabled children and my Husband works away from home.

Thank you so much - Here is my letter :-

Clinical History - Intermittent diplopia. Poor co-ordination. Paraesthesia in fingers. Possible MS.

MRI Head Standard ‘MS’ sequences. Subtle increased T2 and FLAIR signal in upper pons, extending into left cerebral peduncle <3 & 4-8 & 9>. scattered further areas of subcentimetre increased T2 and FLAIR signal in white matter of hemispheres <3& 4-11,12 & 13>. probable left basal ganglia VR space <3 & 4-10>, otherwise normal midline appearance. Major intracranial flow voids patent.

Conclusions Multiple subcentimetre areas of increased signal scattered through upper pons/left cerebral peduncle and white matter of cerebral hemispheres. Diagnosis remains unclear although could be demyelination.

Differential Diagnosis includes small vessel disease, vasculitis, non infective granulomatous or Lyme Disease. <No tic bites - so ruled that one out!!!>

Fiona

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 10/4/2011 3:05 PM (GMT -6)   
You may want to revisit Lyme disease. Tick bites often go unnoticed and they don't always show a rash.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

RobbieEl
New Member


Date Joined Oct 2011
Total Posts : 5
   Posted 10/4/2011 4:03 PM (GMT -6)   
Thank you for your reply - What a great motto to live your life by. All best wishes Fx

anna26
New Member


Date Joined Oct 2011
Total Posts : 7
   Posted 10/5/2011 8:15 PM (GMT -6)   
Fiona, Knowledge is also comforting.  Fear of the unknown is the worst.
 
That said, are you my twin?  My brain MRI result was very similar to yours.  My symptoms were almost identical too, except that I had a previous optic neuritis too.
 
It was the diploplia that got me to the MRI thanks to my eye doctor. 
 
The potential of vasculitis was more concerning to me than the MS because of the prognosis.
 
I was testing (-) for Lyme also.
 
Considering the vasculitis potential, I had an extesive rheumatology workup for inflammatory or autoimmune issues.  It was all negative. 
 
After two more MRIs (spine) and some other tests, I was diagnosed with MS.  Considering the potential of the vasculitis, I was relieved.
 
I obtained, immediately, the discs containing all the MRIs.  I looked at them on my computer.  On-line tutorials are available.  One cannot diagnose themselves like this, but it did increase my understanding so much. 
 
I am doing fine with most symptoms gone. 
Good luck to you. 

RobbieEl
New Member


Date Joined Oct 2011
Total Posts : 5
   Posted 10/6/2011 2:06 AM (GMT -6)   
Anna,

Thank you SO SO much for your SO informative reply.

I too noticed the prognosis for vasculitis and hope it is not so.

My Husband is a Doctor but has a final exam in three weeks so I am telling him everything is fine - I know don't say it.!!!LOL.

Can you request copies of your MRI's I did not know this?????

I too suspect MS - but am 'trying' to be positive.

I will post tomorrow after I have seen the Consultant.

With much love to you and kind wishes,

Fiona X
PS I always wanted a twin.!!!

RobbieEl
New Member


Date Joined Oct 2011
Total Posts : 5
   Posted 10/7/2011 8:36 AM (GMT -6)   
Trying to remember what Consultant said - LOL.

He suspects looking at MRI results that it is MS but has referred me to a neurologist for a lumbar puncture for a definite diagnosis.

I feel ' a little better ' not the other things but here we go again waiting!!!!!!!!!!!!

He thinks I'm right not to tell my Husband so that was nice of him to say so.

He's a very fair man.

Thanks to all of you.

Keep the Faith
Fx.

Carrie48
Veteran Member


Date Joined Mar 2010
Total Posts : 638
   Posted 10/11/2011 9:38 AM (GMT -6)   
Hi Fiona:

I am usually at the Lyme forum but popped in over there just to see what was going on and saw your post. I was having very strange neuro sysmptoms and was seen at UCSF MS center for possible early onset of MS. I had a brain MRI which was 20 small and scattered lesions not typical for MS. Also, had all the other tests...everything negative. They also tested for Lyme and it was negative too. Upon reviewing my MRI, my neuro asked me if I had had lyme disease.

I find it very interesting and encouraging (to me) that your possible diagnosis is Lyme disease.

Anyway, fast forward another six months, I drove myself to Igenex Labs in Palo Alto for a complete lyme panel testing. Igenex tests diferently than regular labs. Regular labs look for anitobodies which your body stops making after infected with Lyme long-term (or so I understand) whereas Igenex looks for dna of the lyme bacteria. Anyhow, I tested positive for Lyme plus a co-infection, started treamtent immediately and now, 9 months later am feeling SO MUCH better! I still have a ways to go because they retest me every three months but I am making progress.

You DO NOT HAVE TO REMEMBER a tick bite to be infected. The most dangerous ticks are the size of a poppy seed and many never notice that they've been bit or develope a rash.

Anyhow, you might want to look into this. If you have more questions, you should visit the Lyme forum. There are a lot of people over there with a lot of knowledge.

Carrie
DX with Lyme and Erlichosis in January 2010. January-August: Biaxin and Amoxicillian. September 2011 - ? on Rifampin and Zithromax. Symtpoms mostly neuro and have 20 small lesions on brain.

RobbieEl
New Member


Date Joined Oct 2011
Total Posts : 5
   Posted 10/12/2011 1:43 AM (GMT -6)   
Hi Carrie,

Thank you for taking time out to send a reply.

I have found these boards both interesting and informative.

People are so strong <including yourself> well done for pushing LOL

I am glad you eventually got a diagnosis. I read somewhere Lyme Disease can be fatal if not caught!!!!<great - and you came back -ve!!!!>

I live in the area with the highest diagnosis of MS in the world someone told me - better move LOL.

I am still waiting to see a neurologist <Yawn>
I think it's unfair everything takes SOOOOOOO LOOOOOOOOOOOONG.

I will nip over to Lyme Disease to suss out the story there - Thank you again so much and STAY well Carrie.

Thinking of you,

Fx tongue
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 17, 2018 5:37 PM (GMT -6)
There are a total of 2,972,613 posts in 325,998 threads.
View Active Threads


Who's Online
This forum has 160831 registered members. Please welcome our newest member, Superifffic.
381 Guest(s), 15 Registered Member(s) are currently online.  Details
Froggy88, Balladeer, Jerry L., Redhead53, isitlyme, opugirl, Girlie, Garion, Sherrine, dbell, Old Mike, LJohn23, BungalowMo, Tim Tam, colitisresearch