Hello, felt like sharing...

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nimdametsys
New Member


Date Joined Oct 2011
Total Posts : 2
   Posted 10/11/2011 11:37 PM (GMT -6)   
Hi, I have had neuro problems since 2006ish, was diagnosed right off the bat with having bi-polar disorder and stuck on all kinds of drugs I refuse to take now. After loosing the ability to walk this past Saturday and having the same lower back pain (feels like a needle in the lower spine) I was taken to a hospital where I miraculously walked home 2 hours later after all the bloodwork was fine, I could just walk slowly after that amount of time after not being able to walk. My grandma lost the ability to walk last year from a similar auto-immune problem attacking her nerve sheathes. I have slipped into psychosis twice since I was diagnosed as being bi-polar and I get way worse with standard drugs, I've read that psychosis occurs in roughly 5% of MS patients and that typical drugs make the situation much worse. Last time I was in psychosis, I remember the awful feeling of someone almost sticking a needle into my lower back where it hurts now. I had problems swallowing which woke me up several times last night, my shoulder itches and smoking and caffeine make the burning in the top exterior of my brain/skull extraordinarily worse. Yes, I'm cutting both of those out. Further indications have been feet burning during weather storms (rare symptom) and I've always been very precise in typing email, for the last few weeks, I've been unintentionally sloppy and notice afterwards (I've proofed this).

Another physician ordered bloodwork again to rule out other things, 1/2 of which has come back fine like it did at the hospital the other day. If the rest comes back fine I go to neuro for a spinal tap. I can feel problems in my brain now that are inflamed by caffiene and nicotine, my back is hurting badly in the same place as it was last year when I felt the same awful pain, and have had this pain be dull basically all year, I thought it was from how I was sleeping.

I don't know what else to say or do, I'm waiting for news of something... I know its not possible to diagnose yourself but I can feel the problems in my brain and spine.

Disheartened.

nimdametsys
New Member


Date Joined Oct 2011
Total Posts : 2
   Posted 10/14/2011 5:20 PM (GMT -6)   
Got the call today, being referred to neurology where they will determine when I am to be seen. Most likely spinal tap is next, followed by MRI. Have had to stop smoking/caffeine and all hot liquids, makes my head burn.

Would a large dosage of some type of corticosteroid help with the brain sensations?
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