Some questions

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Veteran Member

Date Joined Apr 2009
Total Posts : 1304
   Posted 1/13/2012 9:23 AM (GMT -6)   
I have been on here only a couple of times. I came from the Lyme board a couple of times. As a result of Lyme disease, I have HHV6 and CEBV. I am concerned about MS (altho I am taking LDN hopefully as a preventive)

With all these things going on, it is difficult to impossible to know what is causing what. Even my Lyme Dr cannot say -- he ties these things together and has said that I have CFS and Fibro just based on the length of time I've have chronic fatigue and pain. He does link these to Lyme disease. He also specializes in AIDS, CFS, and MS, but I have not gotten into the MS w/ him yet as this has just recently become a concern of mine.

1) I have episodes of total body pain. It is often achey and flulike. It is often a throbbing, inflammatory pain affecting every inch of my body, quite severe. But I can feel very ill from it and then it will be gone (almost) the next day.

2) I have the cognitive issues, severe depression and severe anxiety. I feel like I have a serious mental disorder often. I feel I am operating at 50% or less of my former self. I feel that I have lost myself -- I am not the same person anymore, sometimes I feel that I am 'gone'.

Does any of this sound like MS? Does the pain come and go like this? I am sorry I have not been able to read all the posts -- I have been in bed for the past 2 days. (missing work)

I also have very severe scoliosis of the spine. The pain runs from excruciating to mild to nothing but stiffness and discomfort. I cannot understand why it would come and go. (coming more often than going these days)

Can you please tell me the simplest test(s) for attempting to diagnose MS? Yes, I will certainly ask my Dr, but will not be seeing him for awhile.

When did any of you feel that you had this and what made you feel that way?
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