What is the procedure for diagnosis? Want to know what im getting in to.

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Veteran Member

Date Joined Oct 2007
Total Posts : 748
   Posted 1/22/2012 10:28 PM (GMT -6)   
I am alymie but symptoms seem like MS.
If I were to go to a neurologist what kind of tests would I expect?
I have heard there is or are drugs that can slow progression of this disease.
I HATE doctors,I am sure there are wonderful ones but going to a Dr.is anathemia to me.
I have been putting it off (going to dr.)for a long time. Legs are getting worse, memory not so good.  Holding phone can hurt and turn hand numb with crooked pinkie.   
the thing is my back hurts.  I have never heard of this with MS.
Sorry if I already asked this, if I did I do not remember doing it. 

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Date Joined Jan 2007
Total Posts : 3571
   Posted 1/23/2012 8:53 AM (GMT -6)   
It's going to be hard to find out what's going on with you since you have Lyme disease. MS is a diagnosis of exclusion. They need to rule out everything else that could be causing your symptoms.

You will need to find a neurologist. An MS specialist might be the best way to go. I'm not sure there's such thing as an LLMD neurologist. You can ask on the Lyme board.

The routine tests are: a full neurological exam, an MRI for at least the brain if not the spine, a lumbar puncture with blood work, evoked potentials and a history of specific episodes or attacks separated by time.

Hopefully what you are experiencing is Lyme and you'll be able to get it successfully treated. Best of luck!
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.
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