diagnostic journey--vent

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Date Joined Mar 2012
Total Posts : 2
   Posted 3/3/2012 8:42 AM (GMT -6)   
i feel like i need to write this down and connect with people who may understand. i will try to be brief :)

my first *attack* was two years ago after the birth of my sweet baby girl, piper. it was pretty messy--mainly because i had severe postpartum depression. about six months after she was born it hit me like a ton of bricks, namely burning pain and fatigue. i FINALLY got a doctor to listen to me and after a series of blood tests, they found the dreaded EBV virus. ends up i had mono for six months!! i was sent for an mri--found a lesion on c6. long story short, i was diagnosed with acute partial transverse myletis.

fast forward to five weeks ago. second *attack* including burning pain, fatigue, no spatial recognition of my hands, etc. went to nuerologist number one (without mri) says definite signs of demylenation and ordered more tests. then told me to come back in THREE months. went to get my mri and go to nuerologist #2 (ms specialist osu ms clinic) saw a clinical nurse practitioner and saw a lesion on c2/3. called it acute partial transverse myletis #2 and ordered solu-medrol. i had a reaction to the solu-medrol (weird!) and stopped treatment. in the meantime, i get an email stating that the head honcho nuerologist did not see a lesion. called it *artifact*. they are treating me for all my symptoms.

soooo....i had two attacks spanning over 2 years lasting longer than 24 hours, all other things have been ruled out, and ONE spot on my mri. they claim it's not ms cause it's not in my brain, and now i don't even have proof of second lesion. they are not ordering ANY tests, my mri was a 1.5 (as we all know lesions on spine can be tricky to see with such low resolution) and not ordering another mri. soooo...i go get a second opinion soon. any ideas on why this is so convoluted?? ps--my paternal uncle had ms.
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