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Cosmoluna
Regular Member


Date Joined Aug 2005
Total Posts : 64
   Posted 3/4/2012 10:37 AM (GMT -6)   
Hello everyone - I have no idea if this is relevant to MS but, as I am currently in Japan and English speaking doctors are a rarity, I thought I'd throw this out there....and beg for any insight.
I am 38 have noticed the folllowing things, and while I received a clean MRI 7 years ago, I have a gut worry:
Right shoe is always fully scuffed on top of toes (20 years)
If I have to stand for more than five minutes I sway, like rocking a baby on my hip. Unstoppable. (7 years)
Uncontrollable twitch in right index finger. Really annoying when surfing the web. Always happens when hand is resting on the mouse. (7 years)
When I smile the right side of my smile is different from the left - lower...(3 years)
Right hand finger extension is very limited compared to the left. For example, all fingers curled in except for the pinky - on the left hand the pinky creates a perfect 90 degree angle to the knuckle of the third finger. On the right, maybe 25 degrees.
Electric jolts from left ear down to left shoulder. Turns my head. (comes and goes, but this is lifetime consistent)
Teeth grinding since childhood
Insomnia since childhood
Feeling like I'm being bitten by a bug but....no bugs (lifetime)
Debilitating migraines until college, after which point they became what I call ice pick headaches, right side only

I ask all this because about 8 years ago I had two spontaneous pneumotharax (right lung) within 30 days of each other. When the second one happened I had a bullectomy and talc pleurodesis. Following that surgery, which was laparoscopic...three incisions on my right side, I had a band of numbness across my abdomen and 5 years of chronic pain-head to toe. After five years of being considered to have fibromyalgia, I was put on gabapentin for 6 months and the pain disappeared. Now I have been operating under the information that it was never fibromyalgia, just a bad reconnection of the nerves in my back.
I don't know why, but after my MRI to rule out MS it has stuck in the back if my head.
does this sound familiar to anyone? It will be another month before I can see an English speaking doctor, and, well, I'm curious for any insight.

Thanks in advance for anything :)
11/2004 - Primary Spontaneous Pneumothorax - Rt lung
12/2004 - Primary Spontaneous Pneumothorax - Rt lung
1/2005 - bullectomy and talc pleurodesis
2005 - Dx collagenous colitis
2005-2009 - Chronic pain - Suspected fibro - atypical presentation
2009 - fibro refuted for nerve damage from lung surgery in 2005
2009 - 6 months on Gabapentin - no more chronic pain
2012 - cervical flat back syndrome obs

Post Edited (Cosmoluna) : 3/4/2012 9:35:10 AM (GMT-7)


Cosmoluna
Regular Member


Date Joined Aug 2005
Total Posts : 64
   Posted 3/15/2012 6:51 AM (GMT -6)   
Hello - perhaps the title of my post was misleading. I do NOT have a dx at this point of MS, but I have a fear and I am simply asking....does any of this sound familiar? I can't explain why, and I am not wishing for this, but too many things are...wrong.

Thank you for any insight. With as many reads as I've had to my original post I had hoped someone would respond.

Please.
11/2004 - Primary Spontaneous Pneumothorax - Rt lung
12/2004 - Primary Spontaneous Pneumothorax - Rt lung
1/2005 - bullectomy and talc pleurodesis
2005 - Dx collagenous colitis
2005-2009 - Chronic pain - Suspected fibro - atypical pres.
2009 - fibro refuted for nerve damage from lung surgery in 2005
2009 - 6 months on Gabapentin - no more chronic pain
2012 - cervical flat back syndrome observed
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