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New Member

Date Joined Jan 2012
Total Posts : 18
   Posted 4/13/2012 11:29 PM (GMT -6)   
Hi everyone, I'm back again because I got quite alot of support when I first came to this site a few months ago, I was asking if anyone knew what my symptoms were caused by.  I had some suggestions given to me so I took myself off to my GP and a referal was given to me to go to a neurologist. After my visit with him and and hour and a half later and quite a few tests he told me he suspects I have MS. (That was last Tuesday 10th April).  I had blood tests today 14th April, Tuesday 17th April I have an Inner ear exam, Monday 23rd April, I have an MRI, Monday 30th April, Tuesday 1st May and Thursday 3rd May I have a VER, SSER, and an ENG (I don't know which test will be done on which day), then I go back to him on the 17th May., I am really frightened of all these tests and what the outcome might be. Going over some of my history, I have had a series of major dizzy episodes since 2006, I have always got a dull heavy feeling in my head and am quite often off balance and feel I am walking to the left. 8 months ago I started to get numbness and tingling in my hands, then burning along with the other symptoms and now itchyness as well, this is mostly in my hands but a little in my feet as well. I feel sometimes like my ears are blocked, but they're not and I can hear perfectly.  
My neck is sore and stiff, but so is the rest of my body, I feel very drained and like it is so hard to move from sore tight muscles and joints.
I had my general eye check up at the optometrist and everything was really good but now and then I feel like my vision is not very good, my sight is blurry and when I read my eyes feel jumpy sometimes. 
I am really confused. I guess I just need to wait now, but if anyone has any comments I would really love to hear them.
Thanks, Louisa.    

Forum Moderator

Date Joined Jan 2007
Total Posts : 3571
   Posted 4/14/2012 10:40 PM (GMT -6)   
It sounds like you are on your way to either ruling in or ruling out MS. Your neuro seems to be doing a very thorough job with the tests ordered. Will he/she be ordering a lumbar puncture if the MRI indicates demylenating lesions? That can be helpful in the diagnostic process. Best of luck.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Bad Mojo
Regular Member

Date Joined Aug 2010
Total Posts : 70
   Posted 4/15/2012 12:24 AM (GMT -6)   
  I have MS and your symptoms sound just like mine.  All of my symptoms started with an episode in March 2011, caused by a large lesion on my brainstem.  Prior to that episode, I always recovered fully.  Lesions on the brainstem can cause many symptoms because the nerves "bottleneck" there.  My whole body is numb.  The best way I can decribe it is it feels like all my limbs have fallen asleep.  I have a burning sensation is up my right arm and the right side of my face.  It's always there but taking Neurontin lessens the intensity.  I am constantly dizzy and it seems like my eyes are not in sync (everything I see is very jittery).  I have noticed that wearing an eyepatch helps sometimes.  Moving my head intensifies my dizziness--and when I get very dizzy, I get nauseated.  When that happens I just stop whatever I'm doing and lie down.  A good night's sleep always makes me feel better but any physical activity wears me out very quickly.  I take sleep aids to help me sleep.
If you are diagnosed, your doctor will likely start you on treatment right away.  The key to managing MS seems to be preventing the number of attacks.  I have had four, but only the last one caused long term damage.  Before the Mar 11 epsode I was on Copaxone but switched to Tysabri afterwards.
People can recover from MS attacks.  The brain can heal itself.  I am hopeful every night that I will not wake up dizzy or numb.
Good luck,
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