Posted 4/15/2012 7:44 PM (GMT 0)
Hello, my name is Christine and im 26 ys. old. i had an osteoma on my left temporal lobe on the outside of my skull starting in 2006 with my pregnancy, removed in 2011 because of constant migraines in that area(which isnt supose to happen). after the surgery i lost a lot of long term memory (stuff i should have remembered) and it started coming back to me in my dreams, three months ago my dreams were diagnosed as pseudoseizures... since then iv had severe memory lapses of up to a week, im constantly asking my boyfriend whare my kids are and what day, month, year it is because i just dont know. i have been trying to find an answer for these new sensations iv been feeling that is not a symptom of anything else other then MS. when they first started they were light and now they are overwhelming and irratating as heck! i call them "surges" of electricity, numbing, tingling, sometimes painfull but not that often, they start the first thing in the morning when im conciouse... they last anywhare from three days to weeks, they are worse when i move, especially my head and legs. these sensations start in my head and mostly my face(im afraid to eat because i might bite my tounge and not know it, or not feel that the food is too hot and burn my mouth) it is hard for me to walk or get up, i have to have help constantly holding on to my boyfriend even to go to the bathroom. they are like waves of... numbing electricity going throughout my body, like a sound wave but many at a time? sometimes i tense up my hole body in an attempt to make them go away or less noticable... but just results in muscle spasms? my regular dr sais i DO NOT have ms... even though an mri of my lower lumbar shows indications of it??? ***??? my neurologist said he doesnt think i have ms but is willing to do a head mri again, but wont see me for another TWO MONTHS???? yeah, thats ok, ill just survive on my good looks!!!! did i mention that my migraines came back, in the exact same spot... and that i have been having hot flashes and my body temp can reach up to 104 degrees up to three times a day... but hey, its all in my head right? i havnt been able to care for my toddler for three months now, i always have someone with me because im afraid to be by myself ( falling, seizure, etc.) i have been rather obsesive in trying to find an answer to these strange surges and extreme lack of energy, so maybe i can find some kind of help and or cure, maybe a dr. on here can give me some advice on what to tell my dr to make them listen and not just look and treat me liike im crazy. my other symptoms are tremors, constant fatigue, visual changes with the "wave", vertigo, nausia, cant remember practically anything, even faces i should know..... i am hopeing that someone can help with some advice, i cant even be around my dad anymore because he sais im not christine anymore... people i see regularly say im always pale and sickly looking, but my dr. sais im fine? what do i do, whare do i go? how do i find an answer to what is going on? can someone please help?