And I really do encourage you to read the books I mentioned. The second one,
"The Promise of Low Dose Naltrexone Therapy" is a more clinical book
and the one to ask your doctor and/or neuro to read. It also has in the back a
list of resources such as doctors who prescribe it and pharmacies that can
naltrexone (the "N" in LDN) is a drug that was long ago approved by
the FDA in doses of 50mg to be used in the treatment of narcotics addiction.
So, there is no legal prohibition for a doctor to prescribe it for something
like MS. The naltrexone dose used in LDN ranges from around 2mg to 5mg
depending on the situation, age, size, etc. of the patient. It is so safe at
that level that my niece did not even have to go off of it while she was
pregnant. It is not effective if you are also taking narcotic-based pain
medication (for obvious reasons since naltrexone is used in the treatment of
narcotics addiction). As far as I have learned, side effects seem to be minimal
and mainly consist of vivid dreams at first, but this fades.
way LDN seems to work is that it suppresses the body's production of
endorphins. This results in the body overcompensating by producing more than it
usually would when the drug wears off which helps the body's immune system get
more in balance. MS is an autoimmune condition in which the body's immune
system functions improperly (as I am sure you know); LDN helps to correct that.
it is not a cure, but does significantly slow progression. It does not mean you
will never have a relapse, but I as mentioned in my first post, my niece had
her first one in 6 & 1/2 years and we could pretty much track why. She had
to do the typical bout with steroids, but stayed on LDN during that and is now
back to nursing her new baby (only on the LDN again). And, I will stress again,
she had no new symptoms with her relapse and none of them were anywhere near as
bad as they had been before she started the LDN.
may want to check out the LDN homepage: http://www.lowdosenaltrexone.org/ which has
the latest on research, etc. It is a great resource. Another great resource is
Skip's Pharmacy. They are located in Florida, but have a website: http://www.skipspharmacy.com/. Dr. Skip is
one of the early proponents of using LDN for MS and has a whole section on it.
may have to be open to changing your neuro if you want to try LDN and he
refuses to treat you. My niece did have to change hers. The neuro does not have
to be the one to prescribe, but he may be unwilling to continue seeing you if
you find another way. The resources I mentioned in the back of that book may be
helpful. I can't speak to your situation, but my niece is glad she changed neuros.
luck and let me know how it goes! I'll send up a prayer!