Just diagnosed with ms-what meds did you all start on?

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Lilydee
New Member


Date Joined Jun 2012
Total Posts : 7
   Posted 7/12/2012 2:53 PM (GMT -6)   
I was just diagnosed officially today. Now I have to decide what meds to take, I have researched quite a bit and would love ya'lls advice. Thank you in advance. I have actually had ms since 2005. confused

Carrielcd
New Member


Date Joined Jun 2012
Total Posts : 13
   Posted 7/12/2012 3:30 PM (GMT -6)   
I chose not to use any meds. I have followed the Dr. Roy Swank diet since diagnosis in 2004 and have done exceptionally well. Attitude has been a major factor for me as well.

nikki1980
Regular Member


Date Joined Jan 2012
Total Posts : 38
   Posted 7/16/2012 8:07 AM (GMT -6)   
Copaxone. I got diagnosed with MS this last January, after severe optic neuritis, and my neuro started me on Copaxone in February. Doing great with it. I feel better than I have in a long time.

aquariusgirl
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Date Joined Jul 2012
Total Posts : 2
   Posted 7/18/2012 11:30 AM (GMT -6)   
Hi Lillydee,
I was diagnosed in 2001 I went on rebif right away and had 10 great yrs. After awhile I guess it wasn't working as well. Switched to the oral med Gilenya. Didn't seem to work at all for me and Doc switched me to Avonex about a month ago. I've been having ups and downs for the last year so I'm just hoping to stabilize at this point. *fingers crossed* Good luck to you

Angeldifferent
New Member


Date Joined Aug 2012
Total Posts : 2
   Posted 8/4/2012 5:29 PM (GMT -6)   
I was Dx'd in May....after researching and speaking with other patients I'm going with the Copaxone...So happy to ^ hear that Nikki, that's my hope : ) p.s. i'm kinda nervous about the first reaction thing that can last 15 mins or so....did u have that at all? I'm so med senstive and nervous. But I figure with most of this I have to do mind over matter.....this will be best for me long term and I have to push through all the side effects and etc with it all. If u have a moment. would love to hear more positive feedback on the Copaxone : ) thank you and good luck to all of you : )

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 8/4/2012 11:01 PM (GMT -6)   
Angel,
Welcome. I'm sorry you were recently diagnosed. I am glad to hear you are getting on a med. therapy soon. It can really help. I am nearly 6 years on copaxone. I do think it has made a difference. Aside from one bad flare, I have no new residual symptoms. I am still working full time. I am happy and manage this disease so that it's not controlling my life. The first year of diagnosis was the hardest for me. It has gotten so much better. It has been said...."Life doesn't have to be perfect to be joyful.". Best of luck to you.

Oh I have had 3 IPIRs since taking copaxone. They are uncomfortable but since I was well warned that they can happen but are essentially harmless, I was fine. I never hesitated to take my next dose. You can be allergic to copaxone but it usually manifests as hives or a serious rash. It's rare though. Again, best of luck.

nikki1980
Regular Member


Date Joined Jan 2012
Total Posts : 38
   Posted 8/5/2012 4:00 PM (GMT -6)   
Hi Angel and Gretchen. So you've been on Copaxone 6 years, Gretchen? It is so awesome that your doing so well. I'm glad to hear from someone that has been on it so long. But I've never had that reaction you were speaking of, Angel. Only reaction I've had was skin reaction, and it wasn't that bad. Itching, redness, a little swelling. It went away after a few weeks, and was never that bad.

Singingsupernurse
Regular Member


Date Joined May 2012
Total Posts : 118
   Posted 8/12/2012 7:35 AM (GMT -6)   
been on Copaxone since dx in 1999. You get a bee sting type reaction sometimes from the shot, but the support nurses that come with Copaxone are great.
Those that do not learn from history are doomed to repeat it
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