Feeling Lost In Appointments, Diagnostics, and No Answers

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HoldingOutHope
Regular Member


Date Joined Jun 2012
Total Posts : 44
   Posted 7/23/2012 2:17 PM (GMT -6)   
Hello. I am 30 years old and got sick a year ago. Over the course of the last year, I have seen neurologists, rheumatologists, infectious disease doctors, etc. I became acutely ill last year in June with extreme weakness, fatigue, lightheadedness, and a feeling like I could die...and I'm not kidding. After several months I partially recovered and have had two big flare ups since then (one in November and one last February).
 
I had an MRI of my brain and cervical spine with and without contrast and it was normal. My PCP wants to diagnose me with chronic fatigue syndrome, but I feel like that's a nice way of her telling me she's giving up.
 
I have an array of symptoms, many of them intermittent. Here is the long list:
 
lightheadedness
weakness in my arms and sometimes lower legs
fatigue
diarrhea
nausea
inappetance
stomach pain (upper right quadrant)
hand tremors
muscle weakness/muscle spasms
a feeling of internal shaking/trembling
difficulty standing for long periods of time
 
There are some other symptoms as well. When I have a flare up my head feels like it weighs a ton. I have missed countless days of work. I am fighting for answers, but I'm finding it harder and harder to get anywhere.
 
Do these symptoms sound like MS? And, have any of you had  a normal MRI and then were diagnosed later on? Is it worth it to request a subsequent MRI in the future?
 
Any suggestions you may have would be fantastic.
 
Thanks so much!

HoldingOutHope
Regular Member


Date Joined Jun 2012
Total Posts : 44
   Posted 7/23/2012 2:19 PM (GMT -6)   
I also get white spots in my vision sometimes. They are like little white blotches that appear and disappear. I noticed it most when I'm typing or reading a text message on my iPhone.

mdeal72
New Member


Date Joined Jul 2012
Total Posts : 3
   Posted 7/26/2012 4:35 PM (GMT -6)   
From the research I've done, your symptoms definitely could be MS...but they are also symptoms that could be any other number of autoimmune disorders. I am going through the same thing, though...been working with my new doc since December to try and figure out what's wrong with me, and all tests have come back normal. Hang in there...eventually, you will figure it out. One thing that is helping me is to eat as if I have an autoimmune disorder...I am following the Paleo autoimmune protocol...you can learn more about it by going to the following blog: http://www.nutrisclerosis.com/Blogs/EntryId/48/What-is-the-autoimmune-protocol-of-paleo.aspx

Changing my eating hasn't eliminated all my symptoms just yet (I've only been doing it for a few weeks), but I've definitely noticed an improvement. Hope this helps!
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