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xsporkdork
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/16/2012 2:30 PM (GMT -6)   
So, hello I'm new here. But I just wanted some advice. I have had two MRI's. One on my brain where they found lesions and then another on my neck & spine. I had an initial appointment with a neurologist and she ordered another set and a spinal tap.
I am just kind of freaking out a little bit and don't really have anyone to talk about it with. I don't want to frighten my family or friends so I am just keeping it on the down low until I know something for certain. My follow up to go over everything is this friday and I don't really know what to expect.
I mean if they send you for testing as invasive as a spinal tap the chances are good that you have it right?
Do you have to go on medication?
I have had a life time of treating my body like crap but over the last year or so (because i felt my body basically dying) i have changed drastically. I don't eat dairy, or gluten. I eat lots of veggies and fruit and that has helped a lot. Are there any people that treat MS naturally with success?
I guess I am just kind of putting myself out there to try and network with people that have some in sight into what I'm going through.
Thanks.
:-)

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/16/2012 3:26 PM (GMT -6)   
I am gluten and dairy free. I am also on copaxone. I started right after my diagnosis. I've been on copaxone just shy of 6 years. I still work full time. I have experienced some progression but I am grateful to say that I am surviving the grind. I do have residual symptoms I deal with but for the most part, I have no limits.

Is it the diet? Is it copaxone? Is it luck? Who knows!

Best of luck to you! I hope you find that your lesions are caused by something easily treatable.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/16/2012 3:29 PM (GMT -6)   
Oops. One more thing. You don't have to do anything you don't want to. It's your body. The meds are expensive and most have side effects. Some people with MS do not use any of the DMDs.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

xsporkdork
New Member


Date Joined Sep 2012
Total Posts : 2
   Posted 9/17/2012 1:35 AM (GMT -6)   
So really they don't know if the medication helps? Of course I would want to use it if it actually helped but not if I am paying a ton of money to take pills that actually cause my body to be more toxic. I suppose I will have to do more research.

If you are sent for a Spinal tap, what are they looking for. Is it an 100% yes or no with the results of that?

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 9/17/2012 7:39 AM (GMT -6)   
There is only one pill option for MS. It's quite new and it has some potentially bad side effects. I would not take it. All other DMDs for MS are shots and then there is an IV infusion once a month. You do need to do your homework on all those. MS is an extremely expensive disease to treat. Treatments range from about $2,000 - $10,000 a month depending upon what you use.

I feel that copaxone has helped me. But that is my opinion of my situation. I also feel strongly that lifestyle changes have helped as well.

They are looking for oligoclonal bands in your spinal fluid. Those indicate an immune response. They will take blood at the same time to look for an immune response there as well. If you have the immune response only in your spinal fluid then it can indicate MS. Nothing is for sure. There is no definitive diagnosis. It's a combination of things along with other possible causes being excluded.

shydarkangel
New Member


Date Joined Sep 2012
Total Posts : 1
   Posted 9/18/2012 6:42 AM (GMT -6)   
hi i would really like help ive been suffering for a while now with heavy left side of my body and it feels heavy but my whole body is slow and weak..basicly i seem to have alot of systems of ms, ive had a mri scan and thats back fine but is there any way the scan has missed something as ive heard mri scans dont always detact ms, im upset as its effecting my life as i can barely move some days, the doc is useless and they have taken bloods but they have not even considered ms cause when i landed in hospital they put it down to mirgraines but im like this 24/7 and dont suffer head aches, ive also suffered painful joints& stiffness and pain since 14 yrs old..my docs are always just chucking pills at me &these are strong and cuase my symtoms to get worse please help!
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