I will never forget the train journey home from Whitechapel on the day I received my diagnosis for the symptoms I had been experiencing for a year since 1990. (I was only 22 years old) Both my parents had accompanied me to offer support but the news they had just heard was more devastating for them than for me. (Little did I understand the implications of what was to befall upon me with such a diagnosis)
The eminent neurologist had slapped my MRI scan pictures up on the light box and, in a very unsympathetic manner, announced that the white blobs we could see on the scan were 'probably' MS lesions and to go home, accept it and don't fight it because you can't. (He just fobbed me off.)
After that I didn't see him or any other neurologist for 10 years. (I was too scared of being given even worse news) During this time I suffered two or three relapses a year which usually involved numbness, optic neuritis and balance problems. I struggled through these; I put up with the embarrassment of having to get my food cut up for me. At one stage I went blind in one eye for six weeks. My walking became more and more difficult. I was beginning to accept what I had been told that I was suffering from an incurable illness which would cause severe handicaps as I struggled through life.
I did see a neurologist in 2002 during an acute exacerbation. He put me straight into hospital and hooked me up to a steroid drip. I left hospital three days later feeling a bit better but the effects did not last long after I had finished the weaning course of steroid tablets. The steroids perhaps caused me to suffer a yeast infection for several years afterwards which was extremely difficult to get rid of! This made me scared of ever getting anymore steroid or drugs which may cause further side effects.
I have avoided visits to the neurologist in recent years fearing that I might be put on some drug which might further incapacitate me. I took an active part in MS forums and read a lot about such adverse effects.
This year I read about a dentist and his cranio-dental and skeletal symmetry technique and how he had used it to great effect on MS patients. I had already undergone venous angioplasty to treat CCSVI with some moderate improvements and I was eager to see whether the painful, clicky jaw I had suffered since I was a child had any implication on my 'MS'. He examined me and I was found to have asymmetries in my teeth, jaw, atlas and pelvis and he said he could help me recover! I started treatment in July.
After only three months of treatment my 'MS' symptoms are disappearing. A constant symptom for 22 years, L'hermitte's sign has completely gone.
My walking which was crippling me, is getting better- not progressively worse. I have even managed to walk completely unaided for the first time in 10 years! I sleep better, and my body thermostat seems to be working properly again, normal perspiration. Could it be that my disability was actually caused by a problem with my asymmetries and had nothing to do with MS? Was I misdiagnosed? I have been paying a heavy price having lost my youth to this dreaded incapacity and utter lack of hope and dreading the future as I continued to decline prior to this intervention.
I feel better than I have done for years! I am hoping against hope. I will post regular updates as treatment progresses.
Check mine and others' progress here -www.themsforum.org