I just found this wonderful site. Thanks for a place to read and share our personal testomonies.
I have just been dignosed with RRMS and I'm full of questions. I sure hope some of you that has been there can help me out. I have seen my neuroligist for two visits now. The first time i was dignosed ,I did the infusion and the steroids for four days. The second visit I find out just how expensive the meds will be. The Dr. threw alot of information at me and now I'm really confused about what to do. I was told on my first visit after being dignosed that the infusion would be a life time treatment monthly for me. The second visit the Dr. tells me all about the different clinical studies and that i need to be in one of the three studies , and gave me a pamplet to read. I thought i would get an infusion but no, now the story has changed no infusion for me.
After readin the information I'm more confused than ever.
My question is, if you have RRMS how are you being treated ? I'm thinking about a second opinion.
I realize I do have MS but I don't know what to do. All the meds have soooo many side effects. I'm afraid that the side effects will be worst than the real problem. Has anybody here ever did the clinical studies ?
If so what do you think of the studies and has the meds helped you ? The new meds that were mention to me are Gilena and Copaxone for the clinical study. Anyone familiar with these ?
Please share your experience with me if your on these meds, and also if you have did the clinical studies.
Thank you for reading this and sharing your story with me if you choose to do that.
May God Bless each and all