Baclofen, muscle relaxant, good to take?

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almost medfree
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Date Joined Jan 2004
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   Posted 1/16/2013 11:23 AM (GMT -6)   
Hi Everyone,
 
I'm usually in the fibromyalgia forum. So I'd appreciate some answers here. My new GP perscribed a medication called Baclofen which I heard is usually for patients with MS, I thought I'd better ask more about it. And this would be a good place to ask since maybe I have MS?
 
Does anyone take muscle relaxants or have experience taking Baclofen? I take 10 mg. only at bedtime so far. I've been able to sleep better but the returned pain and tightness shows up again in the afternoon. Is it a good medication to take? Are there side effects?
 
The next time I see my GP I'm going to ask him whether I should have to testing done to see if I have MS. Is it only a brain scan that's needed? But so far there's no follow up appointment made. I think I can just wait.
 
What I have thus far is total body numbness that came on in the last 6 years and muscle tightness and pain from my scoleosis throughout my spine due to a patient lift injury (which I no longer do) and a severe car accident. I also have muscle tightness due to fibromyalgia and joint pain and meibomian gland dysfunction which I try to control with warm, wet compresses and Soothe eye drops.
 
Thanks!
Fibromyalgia, CFS, multiple chemical sensivity, herniated disks, spinal stenosis, osteoarthritis, ADD, sjorgens, sleep apnea, asthma, headaches. The only medication I take is ibuprofen at night to sleep along with my supplements for sleeping. I am on a regiment of different supplements, I eat very nutritiously, and ever since my injury years ago I have been doing prescribed stretches x2 daily.

Post Edited (almost medfree) : 1/16/2013 10:27:46 AM (GMT-7)


Gretchen1
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Date Joined Jan 2007
Total Posts : 3565
   Posted 1/16/2013 6:51 PM (GMT -6)   
I have taken baclofen before. I took it for about 4 months after a flare. I took 20mg 3 times a day. At first I was a bit loopy and sleepy but those side effects went away after just a few days. It worked well work some left leg issues I was having. The leg spasticity was later treated with a few Botox injections and the baclofen was no longer needed.

MS is a diagnosis of exclusion. Doctors only go with MS when all other possible causes have been ruled out. MS can take years to diagnose. The usual tests may consist of: a thorough neurological exam (the doctor will be looking for abnormal reflexes and responses) a brain and spinal MRI, evoked potentials, lumbar puncture and blood work to rule out other diseases/syndromes as causes.

Good luck with the baclofen. I hope it helps. It was a good drug for me.

almost medfree
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Date Joined Jan 2004
Total Posts : 2570
   Posted 1/17/2013 9:30 AM (GMT -6)   
Thanks so much for your reply, Gretchen and the information about MS. I don't think it's anything that needs to be looked into right off. Maybe I could just wait till my next appointment with this doctor. Not sure when that will be.

It sounds as if you're doing well. I'm glad the Botox helped.

I heard brain lesions had cause MS. When I was in the severe car crash I wasn't wearing my seat belt and I hit the windshield (cracked it many places) with my forehead. Could this cause the brain lesions that can cause MS?

Thanks again!
Fibromyalgia, CFS, multiple chemical sensivity, herniated disks, spinal stenosis, osteoarthritis, ADD, sjorgens, sleep apnea, asthma, headaches. The only medication I take is ibuprofen at night to sleep along with my supplements for sleeping. I am on a regiment of different supplements, I eat very nutritiously, and ever since my injury years ago I have been doing prescribed stretches x2 daily.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 1/17/2013 6:06 PM (GMT -6)   
I don't think so. The cause of MS is unknown. It's thought to be auto-immune. I hope you wear a seatbelt now when you are in a car.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

almost medfree
Veteran Member


Date Joined Jan 2004
Total Posts : 2570
   Posted 1/18/2013 4:29 AM (GMT -6)   
Thanks, Gretchen1, for your reply. My car accident was back in the 80's. I've been wearing a seat belt ever since.

Question: I've been on Baclofen for 4 nights now. The first two following mornings, I was groggy and loopy. The third morning I felt fairly normal. Last night I had a lot of trouble falling asleep. The first three nights I felt knocked out and slept for 7 hours which I haven't done in years.

I was wondering if the doctor would want to increase me from 10 mg to 20 mg at night, then if that doesn't help enough in the future he might recommend I take it during the day too. I remember with Gabapentin I had to keep increasing to feel any benefits for sleeping and I came down with a bigtime leg tremor. I went off slowly.

What I was wondering is, will I keep needing to take more Baclofen for it to help me? It does seem to help my muscle tightness.

Thanks!
Fibromyalgia, CFS, multiple chemical sensivity, herniated disks, spinal stenosis, osteoarthritis, ADD, sjorgens, sleep apnea, asthma, headaches. The only medication I take is ibuprofen at night to sleep along with my supplements for sleeping. I am on a regiment of different supplements, I eat very nutritiously, and ever since my injury years ago I have been doing prescribed stretches x2 daily.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 1/18/2013 10:26 AM (GMT -6)   
I didn't need more. You do habituate to it. I don't know if your doctor will want you on more.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

almost medfree
Veteran Member


Date Joined Jan 2004
Total Posts : 2570
   Posted 1/22/2013 7:25 AM (GMT -6)   
Thanks, Gretchen 1.

I have another question. Wondering if a person can easily go from 10 mg of Baclofen at bedtime to taking another 10 mg in the morning every now and then for a busy day with a hour car ride back and forth which is hard on me.

Thanks again!
Fibromyalgia, CFS, MCS, scoleosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, headaches. I am on a regiment of different supplements including sleep supplements, I eat very nutritiously, and ever since my injury years ago I have been doing prescribed stretches x2 daily.

Gretchen1
Forum Moderator


Date Joined Jan 2007
Total Posts : 3565
   Posted 1/22/2013 7:55 AM (GMT -6)   
You'd have to talk to your doctor about that. You will need to be very careful driving while on baclofen. I didn't drive for the first week to ten days while taking it. If you are the passenger then obviously there isn't a concern.
Diagnosed with MS July 2006

I have no lesions on my soul and so I live with no limits.

barbarann
Regular Member


Date Joined May 2008
Total Posts : 24
   Posted 1/22/2013 3:44 PM (GMT -6)   
I have been taking baclofen for 6 years - 20 mg 4 times a day and have had no side effects e.g drowsiness.  It is the only medication that has been prescribed for me and helps a little.

almost medfree
Veteran Member


Date Joined Jan 2004
Total Posts : 2570
   Posted 1/25/2013 5:01 PM (GMT -6)   
Thanks Gretchen1, I won't be driving thank goodness.

Thanks, barbarann, I've been on the Baclofen for 11 days and I'm going to go off. The med gave me nausea (vomited last night, I rarely vomit), made my mind even more foggy, and caused me increased pain during the day.

I'm on 10 once a day at night. Can I stop such a low dose cold turkey?

Thanks!
Fibromyalgia, CFS, MCS, scoleosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, headaches. I am on a regiment of different supplements including sleep supplements, I eat very nutritiously, and ever since my injury years ago I have been doing prescribed stretches x2 daily.
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